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POTS, IC, CFS, and now Masto? Am new here. (Read 35853 times)
MGC
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Re: POTS, IC, CFS, and now Masto? Am new here.
Reply #45 - 01/03/13 at 07:14:11
 
Debrorah, I do apologize if my questions were not specific enough, but in all fairness my questions were not just about why one would take antihistamines. If folks here cannot answer the questions, that is fine. I do understand that there are no physicians here. And if the answer is just that the antihistamines help ppl feel better, and the reason is not known, that is fine too. It happens in medicine from what I understand.

I ask questions. It is one way I expand my knowledge of anything.

Gail
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Kitt39
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Re: POTS, IC, CFS, and now Masto? Am new here.
Reply #46 - 01/03/13 at 13:10:51
 
I appreciate Gail's input.  

Don't believe anyone here has a medical degree, and I understand many of you have been reviewing this information for a long time, but Gail's questions seem reasonable and intelligent to me.

Participation in a forum isn't about making someone feel wrong in expressing a question or opinion?  

This particular forum strikes me as a wealth of knowledge and understanding, but if all I needed was a tryptase test and plasma histamine test and maybe a BMB then  theoretically I could treat myself without a doctor by simply reading this forum?  

If so, I wouldn't be going to see a masto specialist at M D Anderson.

Don't think it's all that simple or 'one size fits all'...

Thank you for All opinions and not just the ones that are 'on topic'.

K



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Futurehope
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Re: POTS, IC, CFS, and now Masto? Am new here.
Reply #47 - 01/03/13 at 14:28:43
 
This thread has me totally confused?!  Us MCAS people need antihistamines even though we may not show high histamine levels in our testing.......and the reason is ........??????

1) Our mast cells are over-reacting to the histamine we do have???

       OR

2) We don't know why, but we respond well to antihistamines???

Which is it, 1 or 2 or both?  Do we know why us MCAS people respond to antihistamine meds?

Actually, I don't really care why we respond to antihistamines, but I am glad something is of use in treating us.
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DeborahW, Founder
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Re: POTS, IC, CFS, and now Masto? Am new here.
Reply #48 - 01/03/13 at 16:16:30
 
Kitt,

Actually you are incorrect. We do have forum members with MDs, and even some actual mast cell researchers are members of this forum. Occasionally, we actually see a response or two from them.

You are correct in that participation in a forum is not about feeling wrong for asking the question. However, asking the question multiple times and receiving multiple responses from knowledgeable people is redundant and not necessary on the forum. If one is further confused about something after multiple answers, it is better to private message the person and take the discussion to that level.

This thread has now exhausted itself and is being locked to new comments. Should you need to further discuss this, please feel free to private message me.
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DeborahW, founder
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