Hi ALL new here thought i mite pass on sum treatment info i have IBMM or sm no skin

My tryptase was going up over 12 months from 31 to 40 to 50 to 65

I than started Zometa iv every 3 months over the next 12 months tryptase went from

65 to 50 to 40 to 35 now i have cut back to zometa every 6 months my tryptase is going back up slowly

At the same time my osteoporosis went from -3.8 to -2.1

I think this sort of info should come from doctors but i have not seen anything about zometa

and tryptase

PETER

hi ana my symptoms are mostly chronic as bone pain and GI
But over the time with lower tryptase it has been lower level pain
and as the tryptase is mooving up the level of pain is allso going up
i am going back on zometa every 3 mounths so i think the tryptase and pain level will come back well hope so