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General Mast Cell Disorders Discussion >> Medicines >> Zometa http://mastcelldisorders.wallack.us/yabb/YaBB.pl?num=1345957612 Message started by peter on 08/25/12 at 18:06:52 |
Title: Zometa Post by peter on 08/25/12 at 18:06:52 Hi ALL new here thought i mite pass on sum treatment info i have IBMM or sm no skin My tryptase was going up over 12 months from 31 to 40 to 50 to 65 I than started Zometa iv every 3 months over the next 12 months tryptase went from 65 to 50 to 40 to 35 now i have cut back to zometa every 6 months my tryptase is going back up slowly At the same time my osteoporosis went from -3.8 to -2.1 I think this sort of info should come from doctors but i have not seen anything about zometa and tryptase PETER |
Title: Re: Zometa Post by Anaphylaxing on 08/25/12 at 18:28:03 Thanks for sharing Peter. So glad you're seeing a benefit. Are your daily symptoms affected? |
Title: Re: Zometa Post by peter on 08/25/12 at 21:16:18 hi ana my symptoms are mostly chronic as bone pain and GI But over the time with lower tryptase it has been lower level pain and as the tryptase is mooving up the level of pain is allso going up i am going back on zometa every 3 mounths so i think the tryptase and pain level will come back well hope so |
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