FINALLY SOME ANSWERS!

I just got back from tilt table test and after 30 minutes the doc says well you don't have POTS.  I said to the nurse "this is impossible" I know this has to be my problem.  Then they shot me with adrenaline and I came within a second of passing out.

Confirmed Neurocardiogenic Syncope.  I need to read more about hyperadrenergic POTS and see what if anything is the difference.  Is this just another one of these "rare" things that docs don't know about?  (Meaning Hyper Pots).

It only took 51 years my friends.  Just think.  My life has been awful for 51 because of this and not a single doctor ever thought to send me to an elecrophysiologist.

I want to thank MSG who first put the thought in my head to look into POTS.

A DIAGNOSIS!!  YEAH!!!!!!!!!!!!!!!!!!!!    

People who don´t have a MC disorder don´t realize how liberating a diagnosis is for us!!!!!   With a diagnosis comes TREATMENT and UNDERSTANDING!!   It empowers us and our doctors to give us a means of dealing with our symptoms otherwise everybody just treats you like you´re demented!!!!!!!

So, as bittersweet as this is, it´s worth CELEBRATING!!!!!!!!!      Congrats!!!!!



Now, neurocardiogenic shock is something I need to brush up on and I´ll have to get back to you about it.  I understand the basics, but I don´t want to just say it off the cuff cause I might get it wrong, so I´ll pop back on here and let you know what I get out of it.


Lisa