Mast Cell Disorders Forum - What tests do I need (initial diagnosis) ?

04/28/24 at 10:37:24

	Welcome, Guest. Please Login
	Latest info can be found on the YaBB Chat and Support Community.

Home

Help

Mast Cell Disorders Forum › General Mast Cell Disorders Discussion › Mast Cell Disorder Doctors › What tests do I need (initial diagnosis) ?

‹ Previous Topic | Next Topic ›

Pages: 1

What tests do I need (initial diagnosis) ? (Read 2838 times)

zippy890

Tutor

Offline

I Love YaBB 2!
Posts: 97

What tests do I need (initial diagnosis) ?
03/05/12 at 02:47:43

I'm gearing up to go to the doctor to (hopefully) be officially diagnosed. I almost certainly (after only 20 short years of suffering) have some form of MCAD. This has not made me wealthy. So, in order to maximize my dollars spent, what test should I have that are essential ? And perhaps, which ones could I sort of do without ?

Is this a Sticky somewhere ? Sorry if I missed it.

TIA,
Todd in Tenn.

IP Logged

Anaphylaxing

Guru

Offline

Hang in there! You can
do it!
Posts: 836

Re: What tests do I need (initial diagnosis) ?
Reply #1 - 03/05/12 at 10:02:59

What tests have you had done so far?

For MCAS, serum tryptase, 24 hour urine N methylhistamine and prostaglandin D2.

Might need to rule out pheo and carcinoid with urine VMAs and 5-HIAA.

Don't be discouraged if MCAS testing comes back negative. A lot of us on here are in that situation and still have symptoms and respond to treatment.

IP Logged

WendyH Tutor Offline I Love YaBB 2! Posts: 93 Hurricane, UT	Re: What tests do I need (initial diagnosis) ? Reply #2 - 05/10/12 at 12:23:14 Skin biopsy if you have UP, bone marrow biopsy and aspirate if you have systemic masto symptoms.
Back to top	IP Logged

Pages: 1

‹ Previous Topic | Next Topic ›

« Home

‹ Board

Top of this page