Susan
Guiding Light
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I Love YaBB 2!
Posts: 211
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Patricia,
I have chronic Lyme disease (about six weeks ago they did a culture and are still finding viable bacteria after six years.) My most persistent symptom has been pain. However, the pain has usually been in my muscles, with more occasional joint pain. I do have a tendency to more easily injure my joints than other people.
The last couple of years I have had increasing inflammation, and since last winter more allergic issues, and more joint issues. I had Baker's cysts behind both knees, and sometimes could barely walk. I would also get swelling and pain in my hands and feet. Most recently, I woke up with trigger finger in four fingers, including both thumbs, and was in terrible pain in all of my tendons and joints for several months.
I take morphine sulfate for the general pain, but it wasn't helping at my regular dose. I was having trouble walking, using my hands, or doing much of anything. I am surprised how much improvement I have had since starting the ketotifen. I can't say absolutely that it caused the improvement, but it sure is a coincidence if it isn't the cause. I can still feel one thumb joint pop if I put too much pressure on it, but other than that, I am doing pretty good.
My GI stuff is still not completely OK, but I just had the endoscopy less than a week ago, so I will give it more time.
I will say, I have a bias against prednisone. Because I have a chronic infection, I have to be very careful not to take predisone, as it will set the infection on fire. So every time someone here talks about taking it, it scares me. I know it is essential in certain things, but it has so many issues, like the osteoporosis, thinning of tissue, and weakness. I hope your husband gets some relief!
Can he tolerate antibiotics? Usually I keep my tendon issues under control with minocycline, but I have been off of it during this GI testing, and everything got worse then. Minocycline has been proven to help with cartilage damage, and is used in both osteo and rheumatoid arthritis. It is a double help for me, with the infections, but I know not everyone with masto problems can tolerate antibiotics.
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