Thanks to both of you Jilli and Josie, I appreciate hearing your ideas.
Jilli, yep I live in the boonies outside a small town (population 654), so I have to travel to the nearest small town with a hospital for care. There is no taxi between towns
Thats why I'll take my own car next time or be stuck. Besides, my family is now angry that I dare to be upset that no one came for 3 hours. They expect an apology and groveling or refuse to speak to me (except for my son).. It will be a very quiet summer LOL.
Yes, the steriods make my blood sugar jump quite high, I have coverage with regular insulin and Im being careful
I see my Hematologist Monday early.
The good thing is, Ive been going to the same place for most labs so I can compare the results--and most of those abnormals have been at that point or higher since January. The hospital lab is also keeping track for me (Some say, "there is a pattern of")... nice to know.
Hon please make sure you have an emergency amount of steriods on you--just like the epi, just in case. I think it would make you feel better, I know it does me.
Josie, I have been borderline low tsh for years but DRs dont seem to want to try me on synthroid.. I'll see about it again on the next primary DR visit. I do have alot of the symptoms but also, some are not there--but because of other things I have going on (like the tachycardia with masto).
I dont think I have addisons.. but anything is possible, If he wants to test me for it, one test cant hurt. I dont want to stay on cortisone for any longer than neccessary, the side effects are horrendous--but it does save my life when needed.
In the US the standards now are, 5 days or less on cortisone and you dont need to taper off. More than that amount of time and you do. The usual rate is go down 5 mg at a time, stay on that for 3 days, then down again 5 mg, until you are weaned off. Right now Im on day 5 of the shock incident so today is my last day on prednisone--but I have a good emergency stash on me if needed
Youre right about the low IGG3 and low IGM explaining the re-occuring infections--but nothing to be done about that, just to be aware.. LISA--I did start on the NAC today, I trust your judgement and dont want to take anymore chances.
I also read an excellant article on immune diseases and the importance of zinc in the diet. It seems it has a lot to do with triggering some diseases (and more than that), so.. Im also taking one zinc a day from now on. I have a very strong gut feeling that it will help.
My HGB has been high since last sept.. maybe further back, I dont know. Im not sure what it relates to but I'll find out in time.
I think the low albumin isnt related to my shocks (I showed it low on lab tests during the 3 months with no shocking) and the lab patterns say it seems to be related to some sort of protein disease. I think its the malabsorption syndrome when I am off of prednisone.
Thanks to both of you and LOTS of love ;
Ramona