kirkmc
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Posts: 16
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Sigh... If only life were simpler. I have to say, I have another rare condition (a cerebral vascular malformation, which has hemorrhaged several times), and I've been through this complex process of trying to process a whole lot of new information at once, and it's frustrating.
In any case, thanks again for all the info. I sent an email to the nephrologist who's ordered the CT scan, and, while I was out seeing my physical therapist, he called back and left a message, basically saying that it's not a good idea to do the scan under these conditions. (He asked me to call him back, but he was busy, so I'll get him on the phone later today.) So at least he does see that this is problematic right now. He did say that he could do an MRI instead, so we'll see about doing that. I've had several MRIs with gadolinium as a contrast agent, and that is not allergenic.
As for triggers, that's interesting. I'd had some mild swelling occasionally, but the first time this got "serious" was one Friday, after the person who cleans my house once a week had vacuumed in my office. Vacuum cleaners, of course (unless they have HEPA filters) spit out nearly as much dust as the suck in, and I recall smelling the dust strongly. During the day, I started feeling weirder and weirder, and in the evening, the swelling felt very strong. The same thing happened a month later, on a Friday, after my office had been cleaned. So perhaps the dust is a trigger? I did a blood test last week for dust-specific IGEs, and am waiting for the results.
In addition to the swelling, I do have some irritation of mucous membranes: generally the nose and mouth, but sometimes my eyes sting. This is almost exactly the same feeling I get from old books - I suspect that I'm allergic to "old book mold," and have an appointment with an allergy doctor in a couple of weeks to investigate that.
Thanks for the heads up about beta blockers and ACE inhibitors. I've taken beta blockers before to try and reduce essential tremor, but, while it worked, it made me too tired. (I am, unfortunately, very, very sensitive to medications, and need small doses of almost everything.) I'll mention the ACE inhibitor thing to the nephrologist.
Sigh...
Again, many thanks for all your help.
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