Hi Heather ,
I should have backed up my comment
regarding cholesterol . My statement was too general .
I have started a thread on cholesterol as I have read some interesting stuff .
Bobbi ,
I hope I did not confuse matters
heather is right that blood work is only one part of the picture . As on paper I have a normal tryptase and my histamine and PG2 have not been checked ( not seen as valid tests in my current medical teams view . I ahve a raiser ESR and CRP and have done since this began . My cholseterol remains high. My triglcerides are improving
Everything else is normal . My compliment 3 is raised and my IGE is 188 , but I only have minor allergies to cats , house dust and grass . I have had full patch testing ,rast testing and cpmpliment testing not in a reaction . My typtase is around 3 , no higher in a reaction ( so far )
I held onto my bloods as a hope of finding an answer , my answer is not here .
My diagnosis is angiodeama . The source of which remains elusive . I dont have heridatory angiodeama type 1 or 2 . 3 is un proveable . i dont have thyroid , adrenal or lupus autoimmunity . I currently have no blood " proof " of histamine either .
However , I have daily flushing , swelling , abdo swelling , cramps and loose stools through strong pain killers . Shortness of breath and wheeziness , nasal congestion , migraines , ringing ears , grainy eyes , blleding out of cycle and from my bottom with no cause ( gyne and surgery done their work up )
In shock I have quick swelling , flushing , itching eveywhere inc down below , swelling of face , tounge and laranx , itchy where I cant get to it . This compromises my airway and my blood pressure will drop sometimes it recovers , others it doesn't .
I have had the conditions excluded which make epi pens a NO .
So I use my epi pen with effect . Sometime I need 2 and everything the paramedics have to offer .
So I am happy I have a diagnosis but the major thing for me has been treatment by doctors who can see whats happening and treat it if they do not know why .
So , instead of my long list of symptoms I am a little flushed ( just had pirtion) as my singulair is just in . This will settle me . I have hormones and pollen in my mix today .
When I first found this forum I was desperate with a capital D . I was in bed barely transfering to a commode by my bed . This place has given me a chance to really say how I feel and its been vital to me
Brain fog , was and is still a problem for me . But I am now on the right meds to help me
The thing I hated is not feeling myself . I could cope with the bodily symptoms but my mind , feeling like it was going , is horrid . Now I know its my symptom , not me . that helps so much . Although it is still irritating that i struggle to remember what I am watching in the ad break .
many hugs
Josie