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Powdered Cromolyn Sodium - Extended Release or Regular? (Read 3781 times)
PepperPOTS
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Powdered Cromolyn Sodium - Extended Release or Regular?
01/09/13 at 13:06:55
 
Today, I contacted a local compounding pharmacy to inquire about getting powdered cromolyn sodium. The pharmacist said they typically make their cromolyn capsules with an additive (can't remember what its called) to make them extended release. She said they can also omit the additive to make plain cromolyn capsules.

Not knowing which would be best, I contacted my nurse and she wasn't sure, either. Anyone encounter this issue and have any info to share?

Thanks!
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Starflower
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Re: Powdered Cromolyn Sodium - Extended Release or Regular?
Reply #1 - 01/10/13 at 07:19:07
 
I haven't encountered this issue... but I'm pretty sure mine are just plain cromolyn sodium.  The only ingredients listed on the paperwork for my insurance company are cromolyn sodium, lactose powder (for filler), and gelatin capsules.  I open each capsule at home so I can dissolve the contents in water.

Heather
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PamH
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Re: Powdered Cromolyn Sodium - Extended Release or Regular?
Reply #2 - 01/10/13 at 14:43:30
 
I get mine from Clarks and it comes in the powdered form in a container and I measure it....so no fillers or capsules!!
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Pam
 
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PepperPOTS
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Re: Powdered Cromolyn Sodium - Extended Release or Regular?
Reply #3 - 01/12/13 at 14:04:54
 
Thanks for your responses!

Well, my nurse went with the extended release. I took my first dose this morning. Holy stomach cramping!!!

I wonder if I should be taking the capsules with a whole glass of water, as I was when mixing in the ampules. I tried downing a glass just after the cramping started and it didn't seem to do much. I probably needed the water right with the cromolyn. I guess? Or, I wonder if I should be dumping the contents of the capsules into water, stirring, and drinking.

Gotta wait til Monday to get in touch with the pharmacist or my nurse.
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hope
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Re: Powdered Cromolyn Sodium - Extended Release or Regular?
Reply #4 - 01/13/13 at 06:43:59
 
Pepperpots, are you lactose intolerant? Maybe your capsules have lactose in them.
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PepperPOTS
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Re: Powdered Cromolyn Sodium - Extended Release or Regular?
Reply #5 - 01/13/13 at 16:24:05
 
hope, thanks for the thought! Thank goodness I'm not lactose intolerant, because I'd have to add that to my problems with histamine, salicylates, sugar, and grains.  Wink

After taking subsequent doses with a big glass of water, I've had no more cramping. Hooray for simple solutions!  Smiley
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hope
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Re: Powdered Cromolyn Sodium - Extended Release or Regular?
Reply #6 - 01/21/13 at 04:04:03
 
PamH-

Is Clarks an online pharmacy? I'm looking for a cheaper form of my med and think the plain powdered form sounds very do-able.
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