I assume it is related because my daughter gets exactly the same symptoms.  

Hopefully these symptoms will go away once they get her on the correct dose of meds!!!


Pam

Hi Angel,

Hope you're feeling better by now.  You got some great aswers so far. I just wanted to add that I used to avoid taking pain meds but not anymore. I just got tired of being in pain and missing out.

One Tylenol 500 mg capsule usually helps me. But if my pain is unbearable I'll take something stronger.

Fwiw, this may or may not apply but flares from Paget's of the skull present as massive headaches. I've found pain killers when needed and avoiding any possible source of lactoferrin help avoid these
flares.

I'm mentioning this because I didn't know I had Paget's until I got a ridge on the top of my skull.  A recent cat dx it too.  I'd had pain in my head / skull for many years before this became apparent.
All areas where I have Paget's hurt when flaring not just this ridge.

I'm 57 and not sure when this first started.

Tc .. Marcia