Hi Joan,

Sorry I didn't reply earlier. I'm in over my head in masto land tho.

I just used Xopenex at my dr office while doing a breath test.
I didn't react when I was there but did afterwards. I got so shakey I had to take a Klonopin.

It didn't help me breath any better either tho. My lungs still felt tight.

Singulair eliminated the tightness in my lungs but it may have contributed to seizure like feelings too. I'm off it for now but plan on retrying a lesser dose later.

I'm on Orapred for the next 3 day. It feels like it's helping my throat swelling but not the raw feeling. Of couse since it was swollen I didn't realize it felt raw / damaged.  The xopenex cause  throat burning and drainage within a few minutes of using it yesterday. So that didn't help.

My doc wants me on zantac or prevacid to see if what I'm feeling is from gerd. I don't feel like I get gerd often enough to use this but I'm finding out that sometimes using a med shows me I did need it.  

tc ... Marcia
       

HI Zippy,

Good to know we don't have to worry about cfs.  

I just found the web in 2005 after my gp told me to go on an elimination diet which excluded wheat, dairy, etc. but not gluten. Within a few days, I no longer had narcolepsy or felt jittery all the time.   I was so excited to finally find something that helped me after 15 1/2 years of just barely functioning with CFS.  

While googling wheat free bread recipes I kept running into the word gluten. Everything I read about gluten intolerance rang a bell with me. After reacting so well to just eliminating wheat, I decided gluten was the next to go.  

I started out joining a celiac forum, then other cfs forums.
I'm xchocoholic in pheonix rising. I wound up on the low ox board after getting a couple of kidney stones. My kidney stone problem appears more related to letting my urine get dark / not drinking enough water and not oxalates. But I'm still being careful.  

I'm finding that I get pelvic and bladder pain from certain high ox foods and not others.  I can eat pistachios and walnuts without getting pain but not chocolate, almonds or peanuts. I suspect there's a mast cell connection not oxalate.    

We've both had quite the journey so far. I saw traditional doctors for 17 years then went the integrative doctor route.  And while I learned a lot about my body, as did my doctor,
I just learned about mast cells recently. Apparently I'm more thick headed than other pwcs ...  

I've been on the paleo diet since 2008 and Wahls since Jan 2012. I'm monitoring my reactions for high histamine foods but am finding it hard to eliminate much more.  Chocolate was eliminated again yesterday.  

I googled Doxepin. Good to hear it's working for you. It sounds like something that would knock me out. 25 mg of Vistaril knocked me out for 3 days ...  

Good luck on your journey.  tc ... Marcia

I'm back.  

I'm using 5 mg at a time of Walzyr several times a day. 10 mg at a time was making me sleepy. I'm using between 10 - 20 mg daily.

I notice an improvement in my OI if I keep some zyrtec in me but not as much as I did initially.  BUT I did myself in by eating known trigger foods and getting kidney stones and a bad kidney infection.  

I still need to salt load too but I only use 2500 - 3000 mg daily. More makes me feel bad.  

tc ... Marcia