Oh, Marcia, I intended to add in the link.  Sorry I missed that.  
http://www.urticaria.thunderworksinc.com/pages/lowhistamine.htm

Don't fret too much about the low histamine diet, stress can make you flare.     Just do what you can and read up so you may recognize what could be a trigger for you.  Some also have issues with salicylates, as Pam mentioned.  Some have started out with a low histamine diet for a while then slowly added in new foods.  Others have already sorted out what works for them and pay attention when they add something new.  All this is so induvidualized, so there is no right or wrong.  If you feel your bucket is too full, then you may need to make more drastic changes.  All this is so overwhelming, but you are well on your mast cell journey.  

Lyn

Marcia,
Perhaps you should try the elimination diet.  Directions are here on the forum.  Basically you stop everything except for a few items.  You give your body time to rest and heal, like a week then you only add one thing back in at a time.  That way you have total control over what goes in your body and can track how you feel with what you take in.  Every few days you only add one item.  If you react you remove it and wait a few days and try something else.
It is not fun, but very productive!
 
For the Kefir, Even if it is not furmented, it is most likey growing histamines.  I can't eat anything furmented without have a bad reaction.  If you have mast cell issues you may have to give all that up. I do know people on the forum take probiotics, however the last time I took them I had a bad reaction.
 Leftovers, and any thing cooked and not eaten NEEDS to be frozen immediately to prevent histamine growth. (esp. meats)
"Foods containing histamine—Aged protein containing foods and fermented foods commonly have increased histamine levels."
Here is a link to a good site:
http://www.urticaria.thunderworksinc.com/pages/lowhistamine.htm

I really don't know if coconut is high in histamine...I do know it IS high in salicylates, so I stay away from it for that reason.
You asked::: I just remembered that the co2 released when bacteria eat causes natural carbonation
Carbonation plays a huge roll in IC-It can make the bladder hurt.  Because it is acidic-I was taught this just last week someone on the forum connected the dots for me!  I couln't figure out why I hurt from drinking an all natural soda- with no preservatives...its the carbonation causing the problems.  You should look up the connection of IC with carbonation-It is very eye opening.
It sounds like you are doing a lot to try to help yourself heal, however  doing the elemination diet would be very basic and give you a little more control.

Marcia,
I can't fast because I'm hungery all the time!!!  
I don't know if we have a constant histamine source, by just digesting foods, it does make sence though!  Maybe someone that knows more about that will respond!
I know people with mast cell issues have problems with the mast cells degranulating and letting the histamines out and/or having too many mast cells that don't behave normally.  This is the reason the antihistamines make us feel better, because it is limiting the degranulation of the mast cells.
I hope we have found some more pieces to your puzzle!

Wanted to let you know I had my first negative diy poor man's tilt table test yesterday.  

Thanks everyone !

My hr was 118 prior to test because my Wal-zyr hadn't kicked in yet.
I rested for an hour so my body could recover.

During my diy pmttt my hr only got up to 90 after 13 minutes. No petite mal or sob.  No bp drop after 3 minutes either.

I did still get feelings of hypoperfusion but I'm seriously deconditioned from having pots for 23 years.

Still too early to call a success but I just had to tell you.  

Tc .. Marcia

Marcia;
What is gfcf ? I have been on singulair for about 2 yr.s now, & it only became generic recently- boy was my wallet happy !
Could you ask your pharmacist for info on it ?
lori

It works for my son within 24 hours.

Hi Marcia;
Singulair worked pretty quickly for me, I can't remember exactly, but I'd say within a week. (I always tell people not to start a question to me with "Do you remember ) I have asthma  & have been on advair, rescue inhalers, & a nebulizer for years. I almost never need to use the nebulizer anymore, & went from using advair 2x, to once a day. I find I only need the rescue inhaler -Pro Air- & nebulizer, when I get a bad cold/flu/allergy season.
I figured the gf was gluten free, but couldn't figure out the rest. Thanks. I am learning to get out of stores when I can't take it anymore. The smells are getting to me more than they used to, & I can tell a smoker from a yard away . I also feel the crowds & stress add to the "bucket".
I try to go early on a weekday.
take care,
lori