3blackcats
Rookie
Offline
I Love YaBB 2!
Posts: 1
|
Hello from a newbie! I have been diagnosed with masto after many years of a slow slide into food intolerance, followed by a quick fall off the edge of a cliff a year ago. Though I'm not totally convinced of this diagnosis, since I don't present with many of the common symptoms... or maybe I just haven't come to grips with the concept of a basically untreatable "mystery" illness yet. My latest DR says the only reason she knows of sudden onset like that was exposure to mold/mildew from water damage... and that fits because there was just such an event in my office last year when it all started.
Well, not started. As I came into menopause, I lost soy, beans, and gluten... but was actually doing well until suddenly I couldn't eat anything anymore and lost 57 pounds in 4 months.
At this point I have six foods I can eat, and I eat a great deal of those foods, on a 3-day rotation. even with 200o-2400 calories a day, I'm barely maintaining a "starving refugee" weigh. And I have frequent digestive disturbances, mostly acid stomach an hour after eating followed by flatulence followed by hot flashes. I am using mostly Homeopathy to control symptoms, with a bit of Tums antiacid, but more than 1 tab a day gives me constipation. The only clinical indications that have shown up from my many thousands of dollars of tests are inflammation of the duodenum and a typtase level between 16-21.
I have learned a lot already, though, from other posts on this network, and I hope I may have gained some knowledge to share that could help others. I am favoring alternative / complementary treatments at this time, like reiki and acupuncture, since I cannot tolerate probiotics, supplements, herbs, and most pharmaceuticals. I have not tried Gastrocrom yet because of the prohibitive expense of it here in the US, but I might get just one days' worth and see if I can tolerate it.
My good wishes go out to everyone struggling with this challenging disorder, with hopes always for improvement!
|