It sounds as though you've made some progress, and that's great!  

I'm wondering if anyone ever tested you for Lyme disease or other tick-borne illness or for parasites.  Those can cause mast cell problems.

Also wondering if you're watching your diet and figuring out food triggers.

I haven't heard of Serc, but certainly plan to look it up.  I'd love to get rid of this ear ringing.  Don't know if it's available in the U.S., though.  Are you also taking any other medicines?

I wonder whether moving now, as opposed to waiting, might improve your health.  It's so important to have a home that's comfortable!  It takes a long time for kids to grow up, and if Mama is well and happy, everybody's happy!

I've struggled my whole life (since I'm 15) with the fatigue that I now know was mast cell related.  My husband has always thought I was "bluffing" (entitled).  Not my parents though.  They always knew I had this awful fatigue.  As a 12/13 year old I would tell my mom that my legs were killing me.  I also remember always saying "I'm boiling" as a very young child.  

 I would say I am so sick I don't know what is wrong with me and my brother would say  "Well if you weren't dropped on your head as an infant you would have been normal".  My dad was supposed to be watching me at 9 mos. old on the bassinet getting my diaper changed and he of got distracted and kerplunk I landed on my poor head.

This forum help me find the answers I was looking for my whole life. My illness is from my nasty mast cells.   It's not because I got dropped on my head.  LOL

Morning are terrible for me too.  It's 12:30 at night and I'm up.  You have to light a fire under me in the a.m. to get me up and out of bed.  I feel we (mast cell disease people) don't fit in, in this world.

Aren't brothers wonderful?  They alway know what to say to make us feel better....   haaaaa!

I have the same problem with sleep and don't feel tired at night until very late.  I've wondered if it's the histamine cycle, and I'm more tired when there's more histamine circulating (in the early morning hours).  My mornings begin around 9:00-9:30, and start very slowly!  One thing that's helped is that our bedroom faces east, and the sun coming in the window, even with a shade, helps me be a little bit more alert in the morning.

Hello everyone, Thanks for chatting on my new update post and appreciate the sugesstions given. I do stay away from as many triggers as possible in fact that has helped very much indeed. Sometimes the triggers in food can be hidden and need to retrace my food habits over a couple of days if i am having a bad episode.
I went to visit my daughter in Brisbane which is a 2hour car trip for me. I stayed a couple of days and headed home just after lunch, i stopped off at my sisters place along the way and noticed my eyes started to get watery and my nose a bit runny. As I was driving home around 5:30 pm i got really tired, so tired it scared me as I was driving. I had to stop after 30 minutes and have an energy drink to try and get me alert enough to get home. There was no public transport I could use as i live in a too isolate area, absolutlely nothing goes out my way. So I had to keep going. I arrived home safe and my energy was good due to the drink i took. I went to be by 10pm and today i have been a right off, so tired and my body in a lot of pain. I had no energy and just slept all day, waking up to get a drink of water and go to the tiolet and sleeping until 4pm. It is now 8:30pm and I still just want to go back to bed and sleep.
I can go through periods like this, sometimes lasting days. There is nothing I can do to make my energy increase. The funny thing is I take oxycontone for pain, firstly started to use it for a fractured spine that is getting worse with age and cannot be fixed. I noticed when I took it my energy levels were better, more alert and of course less pain for my back and the body pain i get with mast cell. Oxycontone generally makes  people tired but after talking to my doctor she has deducted that I am one of the very few % of people who have the opposite effecte to opiat medications.
This is good for me as it helps me through some very difficult days, but i am keen to know how other deal with the fatigue and what they use to attempt to over come it. I have used Q10 and spurallina, vit B's, ginseng etc with little or no affect. Coffee helps a little but i hear that mast cell suffers should not take it..I find it does not make me better or worse when i leave it alone. I find that some triggers for others may not be the same for me. But I know enough to be aware and never overdo the coffee if i am not able to stay awake well on one or two i forget it cause nothing will help. I often just give in and have to change my plans about going out to visit friends, family or do shopping etc.
So if anyone has any suggestions please let me know.
I find my mast cell tends to have abit of a cycle dispite what i do or don't do to upset it. I get quite frustrated at times as there is so much i would like to do and even though i am much better than i used to be i am still forced to sit on my bottem for long periods and keep to a slow and careful routine. It certainly is a difficult illness to manage and almost impossible to master.
Kind Wishes to you all
Keri