dciolli
Rookie
Offline
I Love YaBB 2!
Posts: 5
|
Wow, so THIS TOO IS related to masto? This started for me in my 20's after being really ill and stressed while I had been at work. Thats the first time I remember it, although I DID have problems apparantly with the heart rate and even my blood somehow because back in the 50's I'd remembered having to go for a Lot of tests where they kept sticking my fingers and at THAT time there were ACTUALLY TUBES connected to those needle like "things" where they Extracted my blood. So in my 20's I had been at work and was feeling really sick but was a computer operator for a company that had a Nurse, and one of my co-workers had gone to her office and next thing I knew they had come for me with a wheelchair! I asked what in the world was going on and they ordered me to get in it and took me to the Nurses Office. At that time she had continually taken my bp and pulse and used a stethescope over and over, then asked me if I drove to work, I said yes, and then said well we Need someone to drive you home and you can have someone else pick up your car. I said why? What's GOING ON? She said, well one of your co-workers noticed how ILL YOU LOOK and your pulse is consistently in the 130's and will not come down, you have Got to go and get to a doctor immediately but I reccommend you go to the emergency room! I was a young mother of 2 already and felt so weak that all I did was sleep on the way home since I was being driven anyway, and after they got me home I fell asleep again, by the time my husband got home I'd actually been asleep for over 7 hours! When my mother who Thankfully was a nurse heard from my husband and she came over she took my pulse and it was STILL in the 120's! She too told me to go to the emergency room, I DID NOT. Instead I told her it had happened before and after I rested I'd be fine. So started the "routine" as I have since called it, because I have ALways had problems with that and yet it's hardly ever caught because when I feel THAT bad all I can do is rest, and usually sleep. Now I am 58 and all these years I've had just about Every single symptom masto describes "itself" as well as being "diagnosed" in the early 80's after another MONTH long flare where I could Not get out of bed, too fatigued, a lot of pain, hard to breathe, then the doctors did a viral titer on me and said you have Eppstein Barr Syndrome and CFS and Yuppie flu, and then when I was 42 diagnosed with ASTHMA, no one in family has EVER had it, also supposedly Hashimotos, been on synthroid for over 26 years. God there is SO much that has CONSISTENTLY gone on and in 2005 I became severly ill....again, only this time, had to be hospitalized due to shorter story an abscess on my intestines, a ten day "stint" with iv antibiotics, and a HOST of cat scans and MORE allergic reactions to YOU name it, between the asthma, the skin rashes, and now the intestinal problems that I had ALWAYS had, this abscess was bad, they Thought I had ovarian cancer, hence all the ct scans, after a 10 day stay and a pic line with SO many tests and drugs already, I was told I'd have to have surgery for all the Repairs I'd need to my intestinal tract, forward to July after MORE tests, another colonoscopy, endoscopy and a lovely thing called a "gastrographin?", wow, that was INTERESTING! I could actually SEE the HOLE!Because they'd put a fluid in and you could see it go through your entire tract, and where the hole was you KNEW THAT was NOT Normal...then I got the call from surgeons that my surgery would be open not lapro. Since 2005 my asthma ofcourse, and the skin rashes from being "allergic" to a Lot, and the intestinal problems, I've been on different courses of antibiotics and steroids for years. I also had Many Other "diagnosis" including emphysema and have NEVER SMOKED ONE CIGGARETTE, NEVER! So dr did a genetic test for that and also for an a1 something deficiency, lupus, and only thing ever been positive was once when they did a crp....came back high...gee, don't figure...the one for INFLAMATION in the body....but with all this I have to say the smartest of all...my gastroenterologist, SHE wanted me to take Gastrocrom back in 2009 and I DIDN'T, I was having one of those MONTHS and was nauseated, didn't want to eat and JUST when I saw an episode on House REMEMBERED the MASTO thing....and THAT started me thinking and Remembering ALL that has happened over the past 30 plus years, I was Always allergic to this ad that...BUT then I would NOT be allergic to the SAME thing the Next time...wierd...unless maybe you have masto? This heart rate thing, I have told dr's all my life about the "incident" at work in my 20's and no one has ever been concerned...yet I've been on bp meds now for I think 3 years...twice a day. My mother died from a massive coronary in 2004, she was 73, my grandmother had open heart surgery back in 70's and passed in 1981 from cancer at 73. I have a sister with MS and Both of my daughters have Crohns and my son they believe has Celiac....maybe we ALL have masto?? Anyone relate? My gastro had also wanted to test me for celiac and apologized she'd Not thought of it until after the second endocsopy had been done nov 2009, I havent been back since. Yet my "flares" have continued and I just treat with whatever my primary sees is the biggest issue at the time, whether it's an infection for antibiotics, or steroids for the asthma....the last time in 2009 when I did have to go to hospital for the last endo and colonoscopy I had, there was a major breathing problem and they couldn't figure out why, when I awoke I had been given a breathing treatment and my gastro dr said I scared them pretty bad because even though out with anesthesia I wouldn't stop coughing and my oxygen levels kept Extremely Low, low enough so that when I awoke it felt like they broke my neck, guess they had to scurry....I've had at least 5 to 6 ana's because 3 dr's kept thinking lupus, but they always come back negative. I really think the diverticulosis IS also caused by masto. anyone think that too?? Sorry, this is SO long, wonder if they'll Stop me from posting...hope not...just have SO much I want to Tell and Ask...Thank you SO much to ALL of you for Caring!! Debbie Ciolli
|