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heart rate? (Read 4715 times)
ColleenPlus2
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heart rate?
11/27/11 at 09:05:17
 
any ideas on whether a resting heart rate should vary during the day?

i noticed that over the last several days i've been really fatigued, nauseous, and feeling lightheaded for several hours in the mornings (whether i eat or not). also having some long thin stools (sorry).

noticed my resting HR was at 61-62. last week when i was having a number of flushing episodes it was up to around 89-92.

does anyone know if it's normal for it to be so much different this week?

yesterday and today i also had to have an afternoon nap - and today i took my HR before sitting up after nap - it was back to 88.

does this seem normal?
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kimtg68
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Re: heart rate?
Reply #1 - 11/27/11 at 09:51:37
 
Colleen, i'm not a doctor and I'm only sharing based on my personal experience. Hopefully some other people will add some advice for you.

I too have the issue with my heart rate. It can go from 120 bpm down to 50's. Yes it makes me anxious and then very tired and back and forth! This could also be mast cell related. But what do you do? Well I suggest you have a cardiologist check you out first. Keep record of your heart rate and blood pressure to take with you. Let the doctor rule out and heart conditions. If he can't find anything then focus on mastcell. You may not be on the proper medication and/or something like food or stress or smells or whatever may be triggering you. I DO STRESS that if you have not had a cardio workup that you need to do this first.
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Lisa
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Re: heart rate?
Reply #2 - 11/28/11 at 06:08:31
 
Excellent answer Kim, good job!  See your cardiologist and have other things ruled out is a definite must do!  Chances are itīs masto.

When we are releasing more histamines and other mediators, our heartbeats will normally increase.  When there is less reacting going on, then our heartbeats are more normal.  The reason your heartrate is going up even while you are resting is because you are doing some reacting to cause it.  

Is this normal for a normal person, NO!  But for us, yes, thatīs pretty typical behavior.   Here I am at my computer working on tedios, boring stuff and all of a sudden my stomach churned and I felt my heartrate increase!  Weird stuff what we do!!! Tongue


I hope this helps a bit!


Lisa


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goldielove
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Re: heart rate?
Reply #3 - 11/28/11 at 14:54:03
 
This is how my mast cell disease started actually i was dx with POTS first, postural orthostatic tachycardia syndrome. When I was laying down or in bed my heart rate was in the 50s and as soon as I stood up it went up too 120s now it is much more controlled since I have been taking the histamines although I still take atenlol I can't seem too come off that beta blocker. But I do notice when I am having a bad mast cell attack my heart rate will remain high no matter what I do up down in bed or what ever its gotta be from the mast cells acting badly .
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Anaphylaxing
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Re: heart rate?
Reply #4 - 12/08/11 at 19:50:24
 
Your numbers are within the "normal range" but what's normal for each person is individual. Since ?MCAD, I am overall having faster rates than I ever used to. Also have ?POTS and whenever I have a symptom/reactivity flare my HR gets faster (150) and I get palpitations. I'd keep record of it and see f you can find a pattern
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BrynnKaitlin
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Re: heart rate?
Reply #5 - 01/03/12 at 04:36:52
 
Hello!!

I'm new here, but we believe that I have either SM or MCAD. I'm eighteen, but have had the symptoms since the age of eleven. I have had many problems with my heart rate, and I will have palpitations that seem to last forever!! Other times, my heart rate will be normal, but it will feel like my heart is beating out of my chest. At times, you can barely touch me and feel my heart beating out of my chest or feel my crazy heart beat. It's very alarming sometimes, but I'm starting to get used to it.
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dciolli
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Re: heart rate?
Reply #6 - 01/05/12 at 08:44:27
 
Wow, so THIS TOO IS related to masto? This started for me in my 20's after being really ill and stressed while I had been at work. Thats the first time I remember it, although I DID have problems apparantly with the heart rate and even my blood somehow because back in the 50's I'd remembered having to go for a Lot of tests where they kept sticking my fingers and at THAT time there were ACTUALLY TUBES connected to those needle like "things" where they Extracted my blood. So in my 20's I had been at work and was feeling really sick but was a computer operator for a company that had a Nurse, and one of my co-workers had gone to her office and next thing I knew they had come for me with a wheelchair! I asked what in the world was going on and they ordered me to get in it and took me to the Nurses Office. At that time she had continually taken my bp and pulse and used a stethescope over and over, then asked me if I drove to work, I said yes, and then said well we Need someone to drive you home and you can have someone else pick up your car. I said why? What's GOING ON? She said, well one of your co-workers noticed how ILL YOU LOOK and your pulse is consistently in the 130's and will not come down, you have Got to go and get to a doctor immediately but I reccommend you go to the emergency room! I was a young mother of 2 already and felt so weak that all I did was sleep on the way home since I was being driven anyway, and after they got me home I fell asleep again, by the time my husband got home I'd actually been asleep for over 7 hours! When my mother who Thankfully was a nurse heard from my husband and she came over she took my pulse and it was STILL in the 120's! She too told me to go to the emergency room, I DID NOT. Instead I told her it had happened before and after I rested I'd be fine. So started the "routine" as I have since called it, because I have ALways had problems with that and yet it's hardly ever caught because when I feel THAT bad all I can do is rest, and usually sleep. Now I am 58 and all these years I've had just about Every single symptom masto describes "itself" as well as being "diagnosed" in the early 80's after another MONTH long flare where I could Not get out of bed, too fatigued, a lot of pain, hard to breathe, then the doctors did a viral titer on me and said you have Eppstein Barr Syndrome and CFS and Yuppie flu, and then when I was 42 diagnosed with ASTHMA, no one in family has EVER had it, also supposedly Hashimotos, been on synthroid for over 26 years. God there is SO much that has CONSISTENTLY gone on and in 2005 I became severly ill....again, only this time, had to be hospitalized due to shorter story an abscess on my intestines, a ten day "stint" with iv antibiotics, and a HOST of cat scans and MORE allergic reactions to YOU name it, between the asthma, the skin rashes, and now the intestinal problems that I had ALWAYS had, this abscess was bad, they Thought I had ovarian cancer, hence all the ct scans, after a 10 day stay and a pic line with SO many tests and drugs already, I was told I'd have to have surgery for all the Repairs I'd need to my intestinal tract, forward to July after MORE tests, another colonoscopy, endoscopy and a lovely thing called a "gastrographin?", wow, that was INTERESTING! I could actually SEE the HOLE!Because they'd put a fluid in and you could see it go through your entire tract, and where the hole was you KNEW THAT was NOT Normal...then I got the call from surgeons that my surgery would be open not lapro. Since 2005 my asthma ofcourse, and the skin rashes from being "allergic" to a Lot, and the intestinal problems, I've been on different courses of antibiotics and steroids for years. I also had Many Other "diagnosis" including emphysema and have NEVER SMOKED ONE CIGGARETTE, NEVER! So dr did a genetic test for that and also for an a1 something deficiency, lupus, and only thing ever been positive was once when they did a crp....came back high...gee, don't figure...the one for INFLAMATION in the body....but with all this I have to say the smartest of all...my gastroenterologist, SHE wanted me to take Gastrocrom back in 2009 and I DIDN'T, I was having one of those MONTHS and was nauseated, didn't want to eat and JUST when I saw an episode on House REMEMBERED the MASTO thing....and THAT started me thinking and Remembering ALL that has happened over the past 30 plus years, I was Always allergic to this ad that...BUT then I would NOT be allergic to the SAME thing the Next time...wierd...unless maybe you have masto? This heart rate thing, I have told dr's all my life about the "incident" at  work in my 20's and no one has ever been concerned...yet I've been on bp meds now for I think 3 years...twice a day. My mother died from a massive coronary in 2004, she was 73, my grandmother had open heart surgery back in 70's and passed in 1981 from cancer at 73. I have a sister with MS and Both of my daughters have Crohns and my son they believe has Celiac....maybe we ALL have masto?? Anyone relate? My gastro had also wanted to test me for celiac and apologized she'd Not thought of it until after the second endocsopy had been done nov 2009, I havent been back since. Yet my "flares" have continued and I just treat with whatever my primary sees is the biggest issue at the time, whether it's an infection for antibiotics, or steroids for the asthma....the last time in 2009 when I did have to go to hospital for the last endo and colonoscopy I had, there was a major breathing problem and they couldn't figure out why, when I awoke I had been given a breathing treatment and my gastro dr said I scared them pretty bad because even though out with anesthesia I wouldn't stop coughing and my oxygen levels kept Extremely Low, low enough so that when I awoke it felt like they broke my neck, guess they had to scurry....I've had at least 5 to 6 ana's because 3 dr's kept thinking lupus, but they always come back negative. I really think the diverticulosis IS also caused by masto. anyone think that too?? Sorry, this is SO long, wonder if they'll Stop me from posting...hope not...just have SO much I want to Tell and Ask...Thank you SO much to ALL of you for Caring!! Debbie Ciolli
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Lisa
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Re: heart rate?
Reply #7 - 01/06/12 at 02:37:32
 
Hi Debbie and welcome!

And no, you don't sound crazy and I do believe that there is a connection as are other doctors beginning to see this connection as well.  

Have you been diagnosed yet?  What tests have been run on you yet?   Also, where do you live and are you able to travel to see a masto expert?

I think if you haven't yet got a diagnosis, we can recommend some doctors who can see you and look at the larger picture here and perhaps get you some help.


Hang in there, there are answers to this and on the right medications, most of these issues improve greatly!


Lisa
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dciolli
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Re: heart rate?
Reply #8 - 01/06/12 at 04:50:15
 
Thank you Lisa for adding and telling me I'm not crazy....I knew I wasn't and the Best day was when my gastro dr. back in 2009 actually told me she 100% agreed with me to say that these are connected...IF ONLY I would've taken that box of gastrocrom and USED it, I May have had an answer back then...because she has seen ALL of my "syptoms" UP close and Personal and she apparantly was way ahead of the game....knowing about that gastrocrom...but I was Really nauseated at that time and just didn't want anything to DRINK before Every meal....so I Ignored her and Shouldn't have...I am going to go to my primary soon, I have been seeing the same one for over 7 years, the ONE that actually came close to Killing me back in 2005 I dropped ofcourse, if not, I'd have had same dr for over 14 years....as for the gastroenterologist, She has always been right on top of things when ever I've become Really ill and back in 2009 she is the One who said...."debbie, could be masto, or celiac, and I DID NOT follow up. Answer to your question is no I have Not been diagnosed, I HAVE been diagnosed with SO many Other THINGS, that's why I kept insisting to my gastro dr as well as Primary that these "diagnoses" were somehow ALL connected....if you can tell me where to start I am sure between my gastro dr and primary they WILL make sure I get the tests. I live in Florida on the SpaceCoast...well USED to be the Space Coast! Now it's just a really nice place on the East Coast of Florida. Kind of in middle of coast of Florida, Central coastal area. I also wonder how specialists work, because I have Tricare, that's the insurance you get after you or your spouse Retired Full...from Military Service. I am not old enough yet for Medicare, so I only have the Tricare. Thank You ALL for all that you do here!!!!! I Thank you!! Debbie Ciolli
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dciolli
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Re: heart rate?
Reply #9 - 01/06/12 at 04:57:04
 
As I stated other day BUT it was a LONG post so some may have Missed this part, but I have had that Heart Rate thing for MANY years, always Knew it was strange, but just thought THAT was ME....it's something I've lived with now for over 30 years, and it DOES make you feel absolutely Exhausted! Also very cold sometimes, although I'd rather be cold because the FLUSHING is horrible! Sometimes I get ice water or ice and Just put all over my face and neck, and IT IS NOT menopause, no sweating and that was Years ago, they took my ovaries with all that surgery back in 2005 and I had a partial hysterectomy back in 1982! They had left my tubes and ovaries so I went on producing estrogen and all probably up to early 50's, I was 51 when I had ALL that surgery for my Intestinal problems and they took a Lot of Other "stuff out" back then, but I'd already ad hot flashes on and off for years before that...That heart rate thing is Exhausting....but I think the pain, flushing and Extreme asthma and being allergic to I never know what THIS week?? Makes it Really worse..Thanks to ALL! Debbie Ciolli
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gutless_mystery
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Re: heart rate?
Reply #10 - 01/06/12 at 05:15:43
 
my wife is a nurse and says that the normal heart rate for a healthy adult is 60-100.  If the person is a runner (athlete) sometimes they are normally in 50's.  just FYI if you wanted to know what normal is for healthy adult
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