Hello Everyone
I am glad that I found this site so that I can learn more about mastocytic
enterocolitis and mastocytosis. I was diagnosed with mastocytic enterocolitis in June 2011. Was put on mega doses of antihistamines, chromolyn sodium, zantac. I already have acute asthma but am not allergic to anything. I also have severe GERD and I have had the Nissian Fundolipication surgery twice last one was Feb 2011. My symptoms are severe abdominal pain, massive headaches, severe diarrhea, dizziness, nausea, chronic weight loss, hair loss.

Thanks. Right now my biggest problem that I see is that I have had allergic reactions to the Gastrocomm and won't be able to take it anymore. These reactions were so severe that I almost had to us my Epi Pen. I go back to my allergist this week and hopefully he and my GI doctor will have some helpful information.  

If Gastrocrom isn't working then Ketotifen is the next step.  You need to be on an MC stabilizer.  You should also be taking something like omeprazol for the gastritis and reflux.  This is pretty common for most of us.  The problem is that there is too much gastric acid being released by the MCs.


Lisa