You all have been very kind and yes probably a bit more complicated than mast cell. I do have hashimoto and take a med for it, there was a bit of relief but not much. A doctor referrred me to Castells is at Mass General and I think they all share same info so she should have it or accesses to it I would think if not I will give her the release as there is allot of it. As far as testing we will see what she orders I have had allot but never been to an oncologist, maybe Dana Faber I would mention as carcinoids I gather can be tricky and depending on their location your body may or may not excrete enough seratonin to be detectable.....not 100% sure and did at one time have a mild uptake above left adrenal but endo doc at Lahey thought it was nothing. Maybe I will have that rechecked as he didn't even test me for thyroid antibodies just normal hormone levels so it maybe wise to mention to her.
I do not doubt I am under medicated but with what is the question, one doc mentioned rituxamab but this would require a doc with a different out look than most at Boston, but we will see as it has been mentioned. We have a hospital here in RI what is Women's and Infant's it is basically where children are born. One day they had a commerical on the TV mentioning how they are familar with various diseases such as autoimmune because they are more associated with women then men. Made sense and I may not rule them out as an option.
Low histamine diet...I am not sold yet about this mast cell thing and will wait to see what she has to say. At times watermelon will set me off and I do not think watermelon is high in histamine, my triggers are not what I would think and I am not sure what is a trigger or not...sometimes maybe chocolate but most times not....not really sure, I eat fish...I do not doubt there is a relation with my gut but how and what has been a question. I had at one time terrible gallbladder pain it was functioning at 94% via a hida scan but pain was awful, when it was removed it just doubled my symptoms and I learned later my ANA was elevated and thought they should have looked more into that rather than removal but it's over. Alchohol does set my eyes aflame,brain I never had the reaction to it like I do now. Why I wonder is mast cell is secondary disorder..and hope she can help firgure it out.
I sure would like a glass or two of capt morgan would at times be what I want and it is like Dean Martin said "I feel sorry for the people that don't drink, because when they wake up in the morning it is the best they are going to fell all day"
Does anyone know what a FCe receptor blood test is and it's relation to mast cells?
quote....by rudyard kipling
so I'll see em' later on
in the place where he is gone'
where it's always double drill and no canteen
e'll be squatin' on the coals, given drink to them poor souls
and I'll get a swig in hell from gunga din...
Thanks for the info and encouragement