So I have a profound renewed confidence in my doctors. I visited today and am being taken very seriously. They have already ruled out, with blood and urine tests, all the differential diagnosis people have mentioned. I guess I was just clueless. It was confirmed that they would send me to a specialist outside the HMO after the split tryptase test comes back. Nonetheless, I went ahead this morning and called the specialist's office, made an appt (for 9/1, his earliest - ouch), and signed permission to have my records sent over. They said if my records indicate I need to be seen sooner, they will definitely do so. I am much more relieved today.

I ate two whole bananas and felt better. Wow, that's a lot of food as of late. But, gosh am I hungry. I am so reluctant to try something else because the reaction is so flipping intense and long-lasting. I think I might give my body a break for at least another day and stick with the monkey food.

For those who are highly food-triggered, how long did it take to be able to eat more foods again? Are we talking weeks or months on average? Just looking for the light...

Thanks folks....jane

Jane,
Reading that oatmeal, lentils and rice caused you trouble made my jaw drop...we have been on a research binge this week, and found that we think our 3 yr old with MCAD is reacting highly the last several weeks because although we were doing a low histamine diet with success for some time, many of our foods we were eating regularly (melons, pears and more) weren't available in organic forms in our new town and I was doing more berries and other foods...WELL!!!

In our research binge we found a ridiculous amount of research studies...about how the way they make mast cells primed for degranulation (non-IgE, like mast cell issues) is through adding an acid to them.  All three of the foods you named are highly acidic...along with a lot of known degranulating foods (shellfish, peanuts, walnuts....  HAS ANYONE HEARD OF THIS BEFORE?  I can't find any information on any diet that helps masto other than a low-histamine diet, but Max was doing great for a while...until we added in more beans and rice products.

Today, I'm feeding him a ton of alkaline foods, with low histamine levels, to get him stabilized.  I'll report back...he's only 3, and has to eat what I give him, so he works well as a little canary.  

Oh, and our  little guy can't do most of the medications, because he reacts to every additive, preservative, sweetener and dye...so, we are having to do EVERYTHING nutritionally or with pure supplements...It's making me a little nuts...hopefully at some point the random information in my head with help SOMEONE!!!

We are waiting to hear back from Dr. Castells for an appointment, but my Mom and I are already booked for the conference at the end of October...is anyone else going?

Best,
Tiffany