Im still researching mcad as a possible cause for my symptoms(as well as looking into chiari malformation). On sunday eve i had a full body massage from a friend. About ten minutes after i got a red rash and a lump that was like an insect bite on my left upper arm. I get this in the exact same place about every few months. It seems to happen randomly but i usually feel a certain way with. I have felt very ill for the 4 days since. A bit like flu, achey muscle, bone pain everywhere and extremee fatigue and heaviness in my body. Then i got bad pain in my neck and back of head and down my spine. Pressure and pain in my ears, some pain in lymph nodes, intense pressure and pain in my head, pain in my eyes and foggy visiosn. Hard to stay awake and just feeling awful! Does this sound like mcad and could massage be a trigger? Ive felt ill before after massage.

Linz, massage is not good for me. The one time I let someone do a massage, I had painful cramping of all the muscles that had been massaged, but it didn't start until the next day.

Did you try taking some antihistamine to see if it helps you feel better? That could provide a tiny clue along the way to finding out why you are feeling so bad.

Nancy

Well that makes more sense Linz.. the chronic fatigue syndrome and POTS are common with us...Im sorry youre having such trouble to be almost housebound.. I was at that point a few months ago--adding Allegra worked miracles for me!! Try it and see if it helps.
You certainly need to try some antihistamines and see how it affects you. IF youre dealing with a mast cell problem, you will feel much better after taking them.  We take H1 and H2 blockers like, Zyrtec, Claritan, Vistaril, Benadryl, Chlortrimeton, etc...  especially the Benadryl.  Most of us take Zantac 300 mg twice a day too.  Let us know if any of these help you
hugs
Ramona