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How long should it take for Gastrocrom to work?  My 11 yr old daughter started on Gastrocrom, July 5th (6:30PM).  She is taking 4 ampules a day (100 mg/5mL) each.  In addition, she is taking 10 mg of Zyrtec twice a day, 100 mgs of Zantac 3 times a day, and Entocort for gut issues with elevated eosinophils 3 mgs 3 times a day.  She is not itching but is still having intermittent nausea, joint/bone pain, periods of no energy, some abdominal pain, feeling achy, ect....  

Thank you so very much for responding to me!  I was so concerned because I assumed she would feel immediate results.  I haven't asked about Singulair.  Does he take that instead of zyrtec?  Energy issues and just feeling overall bad is her biggest issue at present.  So thankful she isn't itching though and her nausea is better.  Again, thank you.....have a great day!

Thanks again Patricia!  Another question then I will leave ya alone.  Her liver enzymes are elevated...specifically her ALT, Alkaline Phos, and GGT.  Ever heard of elevated liver enzymes with MCAD??  BTW....our daughter has never gone into shock - is that normal?
Again thank you for your concern and support.

I have MCAD and my liver enzymes were elevated when I first started having major problems (leading to a diagnosis a year later).  Now that I'm more stable mine are back to normal... in fact, on the low end.  The liver is an amazing organ!  If your daughter had any serious damage (which I doubt) all of her enzymes would be very, very elevated.  That would definitely get a doctor's attention.

Heather

ps - As Patricia noted, not everybody shocks... but all mast cell patients have the potential to shock.  It's important to carry an EpiPen.

I'm new to all this, too, and don;t have a diagnosis yet. However, I am responding very well to antihistamines. I noticed that even with Zantac and Zyrtec, that the longer I have been taking them, the better I feel. I don't know if this will be true for your daughter, too, but I certainly hope so!

Thanks for sharing the link.....I am beginning to feel better!  Her ALT was 54 and the normal range is 10-36.  Her GGT was 49 and the normal range is 5-36.

Interesting... you learn something new every day.  Here's a link I found about the kind of cancer your cousin had, which is a rare form of liver cancer found mostly in young people without any other liver disease:

http://emedicine.medscape.com/article/369364-overview

It doesn't sound like the kind of thing that's likely to show up in another family member.  I'm sorry for what happened to your cousin!

Heather

I would also recommend trying Aloe Vera juice, it's supposed to help with GI issues. I uses Georges from whole foods, tasteless and doesn't need to be refrigerated.
A probiotic, VSL3 is supposed to be very good but itbhad traces of lactose so my husband couldn't take it since he's highly lactose intolerant. We use the allergy free formula by jarro.
He also takes a digestive enzyme essential enzymes to help with his digestion. We have tried the Histame but his diet is so limited that he's not even low histamine it's more ketotonic. Very high in protein, he can only digest red meat, lamb, beef, chicken without being in pain. He gets a reaction from anything orange (carrots sweet potatoes) and only eats broccoli, asparagus, zucchini. Everything has to be cooked to death and prab looses any nutritional value but he can tolerate it. I also read someone else on this forum that can only eat orange veggies not green ones so everyone is different. White mushy Japanese rice and occasionally potatoes. if your child can't swallow pills yet you can sprinkle the enzmyme or probiotic on they food, I did this with my daughter when she was younger.

I would also highly recommend getting in to see dr catsells or Aiken in boston, my husband didn't think it would be worth the trip. We were blown away dr Castells, she's like the anna wintor of Mast Cells and really knows her stuff. Any email or phone call is returned within 15 min and you really feel like you have someone from Seal Team Six helping you!

Have patience, stay strong and you will find relief!