Hi Goldie,
Great to have you here but I wish you werent ill. They say that mast cell disorders dont run in families--but lately theve found at least a handful of families where it is, so theyre rethinking that stance. It cant hurt to have family members tested IF you see symptoms of it.
Im sorry youve been so ill. I can see a few problems with your meds. Zantaz is the usually med the doctors use with us, 300 mg twice a day. Pepcid isnt bad but Zantaz is also an antihistamine so it works double duty for you. You need some kind of H1 and H2 meds twice a day.
Plus, that clonidine patch?? If you have CM, you should switch to by mouth pill, any type of patches react negatively with us.
You do need to come off that Atenolol (I was on 100 mg when I was diagnosed, I know that isnt easy). Taper off it veryyyy small bits over a veryy long time--we do better on calcium channel blockers (Cardizem). That tachycardia, is something most of us live with and its terribly annoying, but they are working on finding us a different med to help it.
Im another one who reacts to antibiotics, so they put me in the hospital and give me solumedrol with each dose. It worked
I hope this answers some of your questions and any thing else you think of, just ask away! Nice to meet another Florida girl.
hugs
Ramona