Hi Runner,

 Welcome to the forum!  I don't have spots, but do have SM.  I wonder if you have any idea what is triggering them.  Some possibilities might be something you're eating (try low histamine diet), sun or heat exposure, detergent (try All Free & Clear), bath soap, or other environmental things.  Stress can also trigger mast cells.

  I've read that light therapy does help, but maybe somebody on the forum has actually tried it and can give you some idea.  Mast cell stabilizers might make you more comfortable.  That would be ketotifen or gastrocrom.  You can look through the section on medicines and see what oral antihistamines people are taking.  Has a doctor suggested any meds?

  Will someone please jump in here and tell Runner how to mix the skin cream that's made with nasalcrom or gastrocrom?

  There's so much information on here that can answer almost any question, but if you have something new, just post it, and someone will reply.

Hi Runner!
Welcome to the forum
I was lucky like you were, I have the spots but I didnt have symptoms for over 20 years. About 6 years ago, I started having symptoms.  The last year it got worse enough that Im on disability now, but Im thankful for the years I was able to work.

I havent tried the light therapy but we are all curious, so let us know if it helps you or not , we would love to know. There are quite a few of us here who believe in Traditional Medicine AND Holistic Medicine too...I even love old Chinese Medicine and would like to study it.

If we can help in any way, please let us know. We're glad you're here!
hugs
Ramona