Thanks Melissa, I haven't read all the links yet, but I cannot believe the number of connections here, even down to TMJ, which my son and I both have.

I sent this information on to Dr. Ignacio Blanco, the researcher who discovered the morphed mast cells, and he was very interested in it!

Thanks for the information, Ladies!!


He's told me that fibromyalgia patients, although they have loads of complaints and symptoms he told me that they have 3 major ones: pain, excessive fatigue, and sleeping difficulties.   Dr. Blanco asked me if many masto patients also suffered from this?


How about giving me some comments for me to send to Dr. Blanco?!  How many of us suffer from these 3 major complaints?


Lisa

Yes, Lisa.  In fact, at one point the doctor thought I had fibromyalgia, but I didn't have enough tender points to confirm that diagnosis.

Increasing my doses of antihistamines to both a.m. and p.m. have all but eliminated my muscle pain, unless I have a big episode or a long flare.  If I have a degranulation that includes flushing, even if it's not a really bad one, I get body aches that feel like I have the flu.  Tylenol helps, too, which makes me suspect prostaglandins.  

Antihistamines help a lot with both fatigue and brain fog.  The onset of serious degranulations (in 1992) included extreme fatigue and brain fog.  I was in bed for the better part of 4 months and had trouble following discussions in meetings at work.  I'd get up when the kids got home from school and then go back to sleep as soon as they were down for the night.  Every morning it would hurt just to put my feet on the floor.  I asked to be tested for rheumatoid arthritis, but the test was negative.

I have trouble with sleep onset, for which I take 1/2-3/4 mg. lorazepam nightly.  Most nights I can then sleep through until morning.