Mast Cell Disorders Forum

Mast Cell Disorders Forum
http://mastcelldisorders.wallack.us/yabb/YaBB.pl General Mast Cell Disorders Discussion >> General Mast Cell Disorder Discussion >> Fibro and skin mast cells http://mastcelldisorders.wallack.us/yabb/YaBB.pl?num=1306175577 Message started by missybean on 05/23/11 at 07:32:57

Title: Fibro and skin mast cells
Post by missybean on 05/23/11 at 07:32:57

Hi guys this might be a repeat of what someone else has already posted. So sorry if it is. Thought this was interesting too.

http://painmuse.org/?p=369

Melissa

Title: Re: Fibro and skin mast cells
Post by ruth on 05/23/11 at 11:51:08

Thanks Melissa, I haven't read all the links yet, but I cannot believe the number of connections here, even down to TMJ, which my son and I both have.

Title: Re: Fibro and skin mast cells
Post by missybean on 05/24/11 at 06:52:51

I know! Crazy huh? My mother in law has fibro but she also has tons of masto symptoms too. I'm really excited to see if they will connect all the dots in the future.
Melissa

Title: Re: Fibro and skin mast cells
Post by Lisa on 05/24/11 at 13:10:17

I sent this information on to Dr. Ignacio Blanco, the researcher who discovered the morphed mast cells, and he was very interested in it!

Thanks for the information, Ladies!!

He's told me that fibromyalgia patients, although they have loads of complaints and symptoms he told me that they have 3 major ones: pain, excessive fatigue, and sleeping difficulties. Dr. Blanco asked me if many masto patients also suffered from this?

How about giving me some comments for me to send to Dr. Blanco?! How many of us suffer from these 3 major complaints?

Lisa

Title: Re: Fibro and skin mast cells
Post by Starflower on 05/24/11 at 13:25:01

I had the excessive fatigue... and pain... although mostly joint pain and headaches, not muscle pain or extreme skin sensitivity. Thankfully, my sleep is OK. I'm feeling MUCH better now that I'm properly medicated.

My mom has fibromyalgia and those three symptoms fit her to a T.

Heather

Title: Re: Fibro and skin mast cells
Post by Joan on 05/24/11 at 17:09:59

Yes, Lisa. In fact, at one point the doctor thought I had fibromyalgia, but I didn't have enough tender points to confirm that diagnosis.

Increasing my doses of antihistamines to both a.m. and p.m. have all but eliminated my muscle pain, unless I have a big episode or a long flare. If I have a degranulation that includes flushing, even if it's not a really bad one, I get body aches that feel like I have the flu. Tylenol helps, too, which makes me suspect prostaglandins.

Antihistamines help a lot with both fatigue and brain fog. The onset of serious degranulations (in 1992) included extreme fatigue and brain fog. I was in bed for the better part of 4 months and had trouble following discussions in meetings at work. I'd get up when the kids got home from school and then go back to sleep as soon as they were down for the night. Every morning it would hurt just to put my feet on the floor. I asked to be tested for rheumatoid arthritis, but the test was negative.

I have trouble with sleep onset, for which I take 1/2-3/4 mg. lorazepam nightly. Most nights I can then sleep through until morning.

Title: Re: Fibro and skin mast cells
Post by missybean on 05/25/11 at 04:10:42

Lisa, Hi there. I was diagnosed with Fibro last year before TMEP. I did have sleeping difficulties. Frequent waking.....probably 2 to 5 times a night, I woke up very easliy. When I started hydroxizine of course this is no longer a problem. I have major fatigue! I always have some kind of pain. If I barely bump into something it hurts way more than it should, simple things like holding hands is uncomfortable. Muscle fatigue mostly in upper extremeties. Tested positive for all tender points especially occiput, supraspinatus, trapezius, and knee. Those where the most tender.
Melissa