Hey guys,
Jill has been in the hospital shocking for days and they actually just booted her out even though she is still shocking! So, anyone wanting to send get well messages, this is the place to do it!

Thanks Deb and Ramona!  I went and stayed and my friends house last night.  She's a doctor, so that helped.

I fell asleep straight away!  I had not slept for a couple days.  I woke up feeling awful this morning, ears ringing and such, but am doing better here today.  Was able to go out and get some groceries and such.  Taking it real easy though.

Going to my friends for Easter dinner tomorrow.  I talked to my next door neighbors, they are awesome.  They said to knock on the door anytime I feel sick.  One of them has a medical condition too, so she understands.

I guess they did not officially consider my condition shock as my throat didn't close shut.  I mean, I had everything else?  So because the throat didn't close up, it isn't considered "life threatening" so my insurance wouldn't cover the hospital stay any longer.  They also felt that since the tryptase dropped, I had turned the corner.

You know, as masto patients, I think we really have to work with these insurance companies on these subtle points.  I am going to contact my insurer and let them know about this, and get the straight facts.  I suspect it was some misinterpretation.  I have good insurance, so it should be covered.   My insurer has been great about everything so far, very understanding.

Hang in there Jill! I agree with the insurance comment however the fault totally lies with the uneducated medical staff.  If they do not use the correct verbage then of course insurance cannot continue coverage. It was Anaphylaxis! If they don't understand masto then IA was right in their face. They were negligent in recognizing that.  I'm thinking a highlighted Dr Castelles form  with the description of anaphylaxis  highlighted along with protocol. I think some of us should show up at that hospital Ramona and say, are you looking at me, cuz your weren't lookin at our Jilly and now we are lookin at you, then it's time for an official headbutt of the entire attending medical staff! Time to pull their heads out of the 18th century medical books and OH, possibly listen to the patient. Rather than just guessing on their own! Holy cow, the way they act it's like we WANT to be there, so blessed to be in their presence, just awaiting their supreme choice of doing nothing!  Your attending allergist/doctor needs to be in touch with the experts Pronto! Arggggghhhh!!! I'm glad you have a friend that is a physician, that's the place to sleep!