Hello,
I'm new here and going through quite a lot.  I have a 1 year old and 4 year old.  My condition is causing me to be VERY LIMITED in what I can do and my live in nanny is helping me a lot.  Well she just told me she cant do the job anymore but will work with us on finding someone new.  I live in a house with stairs which further exacerbates my condition.  I have POTS/dysautonomia, and was just diagnosed with UP/cutaneous masto.  

I have high methyllhistamines, normal tryptase, normal CBC's.  Skin biopsy showed high mast cells, spindle shapes.

I need advice.  My local hematologist wants me to have a CT scan of my chest, abdomen, & pelvis.  Then he wants to do the bone marrow.  After that, he wants to try to get me into NIH.  I'm only on Singulair, Claritin, and Pepcid twice a day.  He won't give me any more meds.  I'm so stressed I live in South Florida.  It takes 6 hours to get to Mayo to Dr. Candido Rivera.  And a plane or train trip to Boston or Virginia to see the experts seems very scary right now.  

My husband thinks I should just get the BMB with the local guy and repeat if necessary.  I feel like all the CT scans are a bit much.  But then again I have no idea b/c I'm new to learning about the mast cell stuff.

Is it really necessary to try to go to Mayo or the experts for this?  Would I need to premedicate for these scans and bmb?  
I'm very overwhelmed and stressed with living in a house not meant for me and a nanny that's saying she's gonna leave me with kids I can't take care off, especially with stairs.  

Any thoughts????