YIKES!!!   TALK ABOUT A TIGHT SPOT!!!

I fully sympathize with you Heather!!  What in the world do you do with that one?!!  No, I've not had that problem with urination but with defication, you bet and I've ended up dirtying myself running to get to the bathroom in time!!  I felt like a 4 year old child !!


Oh, there are times when there are aspects of the living the day to day life of this disease are hard to handle!!  VERY HARD!!

Sorry that you found yourself in such a difficult spot my friend!!  This sounds like a new symptom Heather - incontenence and yes, this is part of anaphylaxis and I have read about this, but usually the person is totally blatto when this happens!!!  

How you deal with this one, my friend, I've not the slightest!!!

Maybe Dr. Castells can advise you.


Lisa

Hi Heather .

I have had this problem with poo for many yrs . Recently I have a suddenly painfully full bladder , which  i have to attend now . I have traditionally had a nurses bladder , which can hold a whole days wee .

I noticed it first in shock and attributed it it the prostoglandins hitting my kidneys and high heart rate ( all by myself ) . I thought it was the adrenaline , but it happpens even if I am not quite epi pen level . Now have it regularly . I have attributed this to prostoglandins as even my my blood sugar is within normal limits it happens . I also have regular angiodeama , so a volume is constantly being drained back into system from my lymphatic system which needs get processed through my kidneys . I pee like a horse 3-4 days post shock . As the fluid from my tissues is removed

I have found vestril has helped in both volumes and frequency . Tylenol helps with the prostoglandins . But it is a salicilate so would need to be considered with caution for many .

many hugs
Jose

Hi Heather;
     Brie has had this issue for a couple of years now.  It is a problem that comes and goes.  She will have it for a couple months and then it improves.  She started with frequency and SEVERE urgency.  I took her to the Dr. many times to rule out UTI's and she was always negative.  She had never been a bed wetter and she never had a problem with daytime incontinence... and then a couple years ago she experienced a few episodes of both of these.  This has not occured for a long time but she still will go weeks or months in that when she has to go... she has to go!!!!
                                                              Kim

I have had this problem as well over the last few years. Before I knew I had masto, I was out drinking with my friends, which obviously tends to effect how frequently you have to pee, and a (sober) friend drove us somewhere like MAYBE 10 minutes away, and like 3 minutes into it I had to pee. By the time we were at like 5-6 minutes into the drive I thought I'd explode! I kept envisioning LEAPING out of the car in search of a bathroom. Thankfully I found one in time.

I've never actually had an "accident" but sometimes the urge to pee comes on so suddenly. Not to mention the anxiety I felt for years after that incident I mentioned above... I kept worrying it would happen again, and while I don't feel extreme pain like I have heard other people describe, my bladder feels agonizingly full to the point that it becomes a bit painful. I stopped going out all through college (I was 18 during that first incident, right around the time I started developing my dots).

Anyways, for a few years I was miserable, I lived in NYC for college and there are practically NO PUBLIC BATHROOMS in all of NYC and it made going out torture.

Since I stopped worrying about it as much, I've noticed the symptoms aren't as bad, but when my masto acts up or I'm stressed out I use the bathroom constantly. My suggestion is to drink vitamin water or something with electrolytes to keep you hydrated so you don't have to drink as much liquid, and keep toilet paper in the car and your purse in case your on the go... and half to go (okay that was cheesy, I apologize! lol)

good luck.