What has masto taught me?
- That the word "RARE" does not mean that I don't have that thing!
- That just because the word "RARE" does apply to my situation, it doesn't mean that an answer doesn't exist!
- That just because my doctor doesn't know the answer that there isn't a doctor out there somewhere who might!
- That if I choose to, I can find the answers for my problems for myself without having to wait, impotently, while I HOPE that some doctor will find it for me instead!!
- It's taught me to FIGHT for my answers!
- It's forced me to change, always for the BETTER!!
- It's made me see that life continues and that I can indeed learn to LIVE with a rare disorder and that it doesn't have to ruin my life!! If I allow it to ruin my life, then that was my own choice through the decisions I've made on my own.
- It's taught me to STUDY, to THINK, and to REASON THINGS OUT until I can make some connections and gain UNDERSTANDING!!
- I am not worse off for having gotten sick with this disease. Instead, it's quite the opposite. I'm a better person and this disease has instead ENRICHED my life by allowing me to learn things I never thought I could learn, by showing me capacities and strengths within myself that I never knew I had, and by bringing me into contact with some PRETTY INCREDIBLE PEOPLE!!!!!!!!!!
WE ARE OVERCOMERS!!!!!!!!!!!!!!!!!!!