Hi heather ,
I am so sorry about how poorly you are xxxxxxxxxxxxxx I was reading and you said that endometriosis was excluded with an uss . It also elusdes CT scans . Endometeriosis can only be diagnosed by a diagnostic laparoscopy . This was suspected in me , as my reason for Abdo pain , double periods , pain in my liver area and back pain . It was negative .
The mariena coil is a useful tool . there are also other treatments avilable . Some gyne promote using these to asses effect before surgery others just want to look and know for themselves . less invasive is a hysteroscopy , camera into the womb for direct assesment of the womb lining xxxxxxxxxxxxx This doesn't diagnose endometriosis in the pelvic cavity , only inside the womb xxxxxxxx
My surgery was done in a hospital not believing my mast cell status .
I per medicated myself with steriods and pririton (H1) and they agve me IV ranitidine on induction .
I came through as planned . i felt like I had misbehaved in theatre , tight chest , itchy later that day as i am after a biggie ( epi pen level ) . The anethatist didn't look me in the eye when I asked if I had behaved . So I do't know if I did degraualte .
BUT , This was in a hospital poorly prepared . Any planned surgery for you would be well planned and you suitably medicated under dr cassels guidance .
I also ahd emergency surgery on an abcess , on good friday without my main notes . I premedicated myself again . I did fine xxxxxxxxx
Below the waist procedures can be done with spinal analgesia or an epidural using the local anesthetics that are safe for us . NO nasties . This will remove the risks of general anagesia and you can be observed fully for all / any signs of problems xxxxxxxxxxxxxxxxx
I know they don't want test your hormones . BUT in not doing so they are not in possestion of important info that is easy to gain . In not doing so they may be compromising your care xxxx Its hard being strong in the face of all our doctors . But in this situation I think pushing for this is vitally important .
I am assuming you have had a smear - PAP smear . Just to be safe
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I am seeing a heamotologist / immunologist ( Pal of Dr Grattan here ) on the first of march . Ill let you know my outcome in the persuit of an answer to my bleeding , Both extra vaginal bleeds between periods and rectal bleeding in realtion to my reactions . One happening in A&E after a 2 epi pen and multiple other treatments inc IV magnesium for continuing wheezyness . I had a chest infection as my trigger . I have associated the bleeding with corn and gelatine in my meds . They are now clean and I am having less . They come in a week of a biggie either before or after xxxxxxxxxxxxxxxxxx
I manged to hold off my period related biggie last night xx I have found ranitidine a god send in histamine mopping up terms . I lost my nights sleep in self preservation mode . I have an awake period after any significant reaction , today I came on .
I have musule shakes / spasms in all muscule groups at various times . As Lisa said smooth musule cramps are a histamine effect and compliment chemical 3a 4a and 5a ( anaphlatoxins ) Continual low level oxygen stops them , whist I have it
. My legs shake eevy night when i settle . My thoughts are - after scans of the area , that it is enlarged lymph nodes , in my pelvis , mopping up my leg angiodeama each night .
Hugs and many thoughts xxxxxxxxxxxx
Josie