Yahooo for Melissaa!!!!!!!!!!!!!!!!!!!!!!!
Atta girl!! If I remember, there were several of us! There was a time I was boycotting the men left and right and finally, now that I've got a diagnosis, they don't dare argue with me anymore so I can return to working with the men as well. But I still prefer the women for I learned that too many of the men are arrogant. A defect with men is their arrogance, and that with women is that we take everything too personal. The down side of each sex. But there are times when you want that arrogance on your side and your want that quality of taking things personal as well. In their right places, they are good qualities too.
This is really good, Melissa for it sounds like she knows enough about masto and UP to accept it. The fact that she's upped your meds means she's knowing enough and to ask for a tryptase! That's really a good sign.
Now, what you are needing is to give her information as to the existence of the non-clonal MCAD. If you can open her mind up to these forms of masto, then you've got a keeper of a doctor there. My main doctor is my dermatologist, who has specialized in masto, and my angiologist, who is a surgeon. Both of these women are who keep me safe. My dermatologist lives far and I work with her through emails. My angiologist is who takes care of me at home and I run to her with most of my problems. She gives the most support to my dermo! So, you can indeed work with doctors who don't really know the disease as long as they are interested enough to try to do a bit of study and they are open to helping you.
Good for you,!!!
My advice, Melissa, working with doctors is a 2 way street. If you are going to win her trust, you need to follow her advice. So, even though the medication may be more expensive, follow her advice for this month. Do what she asks of you and cooperate and if you start having trouble, give her some phone calls to let her know how things are going. This way she will see that you trust her and she will not feel that you are being a difficult patient who is convinced that they know more than the doctor! This way your doctor/patient relationship will mature and grow.
We patients do know what our doctors do with us and some of us do have the privilege of working with authorities, but we also still have to work with our local doctors and those doctors are easily intimidated and, as my masto doctor said, they have tender egos. It's easy to crush that ego of theirs when you've got more information and I've worked with my doctor well - we have an excellent workign relationship and she's not so easily crushed by my insistance anymore and I'm not afraid to let her experiment with me either. She is after all who is my doctor and she knows my reactions and how I deal with things and if she needs to do some adjusting of my meds, then I let her knowing that she's trying to do her best for me. I've learned not to feel so insecure even though it may cause me some reacting. She did this recently with me because we needed to find what was causing some shock. She had me go off of the h1 blocker and that was torture. Then we switched to the h2 blocker and that wasn't quite the torture it was without the H1 blocker. Now she has me off my hypertension meds. She reduced my h2 blocker because the mixture of the two seemed to be doing a beta blocker situation with me slowing my heart rate down and thus putting me into shock. Yet, the hypertension meds are also doing the same, apparently lowering my pressure too much too!
So, all of this toying around with my meds hasn't been easy or pleasant but she's got to try some things and if I don't cooperate then she'll give up!
So, cooperate with your doctor - let her see what she can do. She's working with you and listening to you and she'll take you as far as she can! If you don't do well with her treatment, then give a yelp! She'll hear you!!!
Lisa
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