Kim,
I am really sorry to hear of the tragedies that are happening in your life right now. Those are really devastating blows and I'm sorry they've all come at once! Hard to swallow on a normal basis, but one on top of the other, yes, it is shocking to the brain and emotions! I'm sorry!
On the other hand, what terrific news and what a tremendous burden that takes off of you! Your hard work and insisting with everything is paying off finally! And because you held on tight, insisting and standing firm in your convictions, your doctors have finally caught your vision and this is PERFECT! I couldn't be happier for Brie!!!
Now, we need to keep our feet on the ground for remember, this is a rare disease and some of us are even more unusual than the others and even though you can't go any higher up than Dr. Castells, she still doesn't know it all and you may come home from seeing her still wondering what some things are and how to deal with them. She will do her very best for Brie, that much I'm certain. How much she'll be able to uncover and treat is another thing and it may take time to get it all sorted out. But with your doctors following her lead, you will see, the treatment will be much improved and Brie will begin to improve.
I hope you can get an appointment soon, or during the summer when it won't cause your kids or Brie any difficulties with school and homework. Yet, I 'm really pleased to hear this good news! This is great!!!
Hooray for Kim!!! Hooray for Brie!!! Hooray for Brie's smart doctors!!!! and Hooray for Dr. Castells!!!!