(Archived from sandi - original forum)
sandi

Can everyone list their current mato meds here? I know everyone is different, this would be a place where one could go to get an idea. I had in my mind what Deb is taking, Ramona, and Lisa, and it seems my mind decided to purge all intel this weekend
Thanks! Sandi

Geeze I spelled cocktail wrong up in the title but can't seem to edit it... I'm special needs today!
01 November 2010 12:07 PM

(Archived from riverwn2 - original forum)
riverwn2

My med regime is very similar to Heathers  Here it is;

Morning:
10mg Claritin
10mg Zyrtec
300mg Zantac
500 mg Quercetin
Nasalcrom 2 puffs--cant afford Gastrocrom
Zaditor 1 drop per eye--as source for Ketotifen
BP med-Cardizem
Insulin
40 mg prednisone (tapering off for recent shock)
800 mg Bactrim DS--for UTI will be done in 8 days

Mid-day:
extra antihistamine as needed (IF reacting)

Evening:
10mg Claritin
10mg Zyrtec
300mg Zantac
500 mg Quercetin
Nasalcrom 2 puffs
Zaditor 1 drop per eye
4 mg Chlor-Trimeton
BP med-Cardizem
Insulin
800 mg Bactrim DS

As needed:
5 mg  vicodan <--usually twice a day
.25 mg Xanax
25 mg  Benadryl
25 mg promethezine--nausea/vomiting
EpiPens (very rarely)
I also carry emergency prednisone 20 mg (if needed)

Hugs,
Ramona
__________________
Remember to count your blessings! mastcelldisorders.wallack.us
01 November 2010 03:14 PM

(Archived from jysmith - original forum)
jysmith

I take these daily:  (BTW I have systemic mastocytosis, confirmed with BMB, and have digestive and flushing difficulties, sometimes tachycardia, brain fog)

morning:
          Synthroid  
          60 mg. Allegra (fexofenadine)
          150 mg. Zantac
          1 vial gastrocrom
          500 mg. bromelain (2400 gdu)

Before lunch:  1 vial gastrocrom, calcium and vitamin D suppplement w/ magnesium and zinc
                     500 mg. l-glutamine

Mid-afternoon:  PRN  60 mg. Allegra

Just before dinner:  500 mg. l-glutamine
                            1 vial gastrocrom
                            500 mg. bromelain (2400 GDU)
                            calcium, vitamin D, mg, and zn supplement

before bed:  10 mg. Zyrtec
                  20 mg. Pepcid
                  1 vial gastrocrom

Other PRN:  Benadryl, Tylenol, ondansetron for severe nausea, nasalcrom, Veramyst, epi-pen (very rarely...only have given one to myself; have had epinephrine 4 other times at hospital, prednisolone (avoid it if possible)

May be foggy enough to have forgotten something.


__________________
Take care, Joan

*******
"I try to take one day at a time, but sometimes several days attack me at once."
01 November 2010 03:18 PM

(Archived from jysmith - original forum)
jysmith

I had to laugh that I wrote that I have "digestive and flushing issues."grin  Of course, I meant turning red, not pushing down the handle!  LOLOL.  Joan
__________________
Take care, Joan

*******
"I try to take one day at a time, but sometimes several days attack me at once."
01 November 2010 10:37 PM

My son (22 months) takes the following

am 3/4 tsp Zyrtec
1.2 ml Zantac

before each meal 2 vials gastrocrom

pm 1.2 ml zantac

benadryl for breakthrus and epipen jr on hand at all times.

Does anyone use cromyln for vaginal itch??  I have used it with a sensitive astroglide lubricant and it works very well.  I'd like to make an ointment but need a script and compounding pharmacy to do this.  May be hard to get a doctor to believe me.

Here is my updated list of meds.. it changes as time goes by;

Morning;
ditropan for bladder spasms
10mg Claritin
10mg Zyrtec
300mg Zantac
Vistaril 25 mg for brain fog and bladder spasms
500 mg Quercetin
Nasalcrom 2 puffs--for dry sinuses
Gastrocrom 2 vials
Pataday eye gtts 1 drop per eye
BP med-Cardizem
Insulin
50 mg prednisone (tapering off for recent shock)
259 Cipro--for UTI will be done in 8 days but Im reacting to it  not taking
Atenolol 12.5 mg down from 100 mg..for tachycardia.. I cant seem to make the final jump off of this, my heart rate jumps wayy up if I dont take this tiny amount.

Mid-day:
extra antihistamine (zyrtec or Benadryl) as needed (IF reacting)  I think I will do this more often, as I am flushing during the day now.
GastroCrom 2 vials

Evening:
ditropan for bladder spasms
10mg Claritin
10mg Zyrtec
300mg Zantac
500 mg Quercetin
Vistaril 25 mg for brain fog and bladder spasms
Nasalcrom 2 puffs
GastroCrom 2 vials
Pataday eye drops 1 drop per eye
4 mg Chlor-Trimeton <--just re-added this
BP med-Cardizem
Insulin
250 Cipro... not taking but Im supposed to be, Im reacting to it

As needed:
Prilosec for heartburn
.02 mg clonidine for high BPs
10 mg  vicodan <--usually three a day
50 mg Tramadol, if my pain level is still bad between the Vicodan
.25 mg Xanax<--usually once a day, this is a life saver to me, keeps m stress level wayyy down, I do better all day
25 mg  Benadryl--for flushing in between doses of meds
25 mg promethezine--nausea/vomiting
zoftan for nausea that the above med doesnt control
EpiPens (very rarely)

I also carry emergency prednisone 60 mg (if needed) IF I start going into shock, I take this just before calling 911, it makes my shock episodes less severe and life threatening

MY Emergency meds that I carry--in case of shock are 2 epipens, the steroids 60 mg and Benadryl 50 mg.

Recently my primary threatened to take my vistaril away if I didnt stop taking zyrtec. He said I was over dosing myself and he even went as far as to call my pharmacy and tell them that! I stopped taking the zyrtec cause I needed the Vistaril so much.. I ran out of claritan and Quercetan and yes, you guessed it.. I went into shock.. last week.. I think Ive learned my lesson that this is MY body, my primary doesnt feel what I feel and his mistakes could cost me my life! I wont stop taking them again
hugs,
me

I've only recently been diagnosed with MCAD.
Allergies all my life so I'm ultra sensitive to anything additional that comes along.

A.M.
10 mg Zyrtec (only brand name)
150 mg Zantac (mint coating only)
325 mg coated Aspirin - for the brain fog
40 mg prozac  

P.M.
10 mg Zyrtec
150 mg Zantac
325 mg Aspirin
10 mg Singular

recently added 25mg Hyroxyzine (helps with bladder pain)

Feel stable physically.  I'm still thinking that nothing is wrong with
me and it must be all in my head, however, last time I tried to
go off my meds, I crashed.

robin