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General Mast Cell Disorders Discussion >> Medicines >> List of your masto cocktail! http://mastcelldisorders.wallack.us/yabb/YaBB.pl?num=1294181956 Message started by Riverwn on 01/04/11 at 10:59:16 |
Title: List of your masto cocktail! Post by Riverwn on 01/04/11 at 10:59:16 (Archived from sandi - original forum) sandi Can everyone list their current mato meds here? I know everyone is different, this would be a place where one could go to get an idea. I had in my mind what Deb is taking, Ramona, and Lisa, and it seems my mind decided to purge all intel this weekend :) Thanks! Sandi Geeze I spelled cocktail wrong up in the title but can't seem to edit it... I'm special needs today! 01 November 2010 12:07 PM |
Title: Re: List of your masto coctail! Post by Riverwn on 01/04/11 at 11:00:46 (Archived from starflower - original forum) starflower My current cocktail is... Morning: 10mg Claritin 150mg Zantac 4 vials of Gastrocrom Mid-day: 10mg Pepcid Complete Evening: 10mg Zyrtec 150mg Zantac 30mg Singulair 4,000iu vitamin D 500mg calcium 4 vials of Gastrocom As needed: Tylenol 50mg liquid Benadryl EpiPens (very rarely) Not long ago I was taking 300mg of Zantac twice a day and doubling my H1s (Claritin, Zyrtec)... the summer was very hot and I was having a lot of problems with hives. Now that things have calmed down I dropped back to my previous levels. We'll see how it goes ;) Heather __________________ Through the years I have learned Some things worth the tellin' And you'd be right in guessin' That each and every lesson... they were hard won. 01 November 2010 01:18 PM |
Title: Re: List of your masto coctail! Post by Riverwn on 01/04/11 at 11:02:25 (Archived from riverwn2 - original forum) riverwn2 My med regime is very similar to Heathers :) Here it is; Morning: 10mg Claritin 10mg Zyrtec 300mg Zantac 500 mg Quercetin Nasalcrom 2 puffs--cant afford Gastrocrom Zaditor 1 drop per eye--as source for Ketotifen BP med-Cardizem Insulin 40 mg prednisone (tapering off for recent shock) 800 mg Bactrim DS--for UTI will be done in 8 days Mid-day: extra antihistamine as needed (IF reacting) Evening: 10mg Claritin 10mg Zyrtec 300mg Zantac 500 mg Quercetin Nasalcrom 2 puffs Zaditor 1 drop per eye 4 mg Chlor-Trimeton BP med-Cardizem Insulin 800 mg Bactrim DS As needed: 5 mg vicodan <--usually twice a day .25 mg Xanax 25 mg Benadryl 25 mg promethezine--nausea/vomiting EpiPens (very rarely) I also carry emergency prednisone 20 mg (if needed) Hugs, Ramona __________________ Remember to count your blessings! mastcelldisorders.wallack.us 01 November 2010 03:14 PM |
Title: Re: List of your masto coctail! Post by Riverwn on 01/04/11 at 11:03:44 (Archived from riverwn2 - original forum) riverwn2 I use both Claretin and Zyrtec because right now my Dr wont prescibe both Allegra and Singulair and even having one script, I have to wait for it to come from the company (expense). __________________ Remember to count your blessings! mastcelldisorders.wallack.us 01 November 2010 03:16 PM |
Title: Re: List of your masto coctail! Post by Riverwn on 01/04/11 at 11:05:28 (Archived from jysmith - original forum) jysmith I take these daily: (BTW I have systemic mastocytosis, confirmed with BMB, and have digestive and flushing difficulties, sometimes tachycardia, brain fog) morning: Synthroid 60 mg. Allegra (fexofenadine) 150 mg. Zantac 1 vial gastrocrom 500 mg. bromelain (2400 gdu) Before lunch: 1 vial gastrocrom, calcium and vitamin D suppplement w/ magnesium and zinc 500 mg. l-glutamine Mid-afternoon: PRN 60 mg. Allegra Just before dinner: 500 mg. l-glutamine 1 vial gastrocrom 500 mg. bromelain (2400 GDU) calcium, vitamin D, mg, and zn supplement before bed: 10 mg. Zyrtec 20 mg. Pepcid 1 vial gastrocrom Other PRN: Benadryl, Tylenol, ondansetron for severe nausea, nasalcrom, Veramyst, epi-pen (very rarely...only have given one to myself; have had epinephrine 4 other times at hospital, prednisolone (avoid it if possible) May be foggy enough to have forgotten something. __________________ Take care, Joan ******* "I try to take one day at a time, but sometimes several days attack me at once." 01 November 2010 03:18 PM |
Title: Re: List of your masto coctail! Post by Riverwn on 01/04/11 at 11:07:08 (Archived from deborahw - original forum) deborahw Great question! Even better would be for everyone to list what they are diagnosed with (or their suspected diagnosis). I have Idiopathic Anaphylaxis. 7 am 300 mg Zantac (prescription, not over the counter) 180 mg Allegra 4 pm 300 mg Zantac (prescription, not over the counter) 10 mg Zyrtec If I feel unwell anytime before my 4:00 meds, I can take an extra 10 mg Zyrtec. If I feel unwell anytime after 4pm and before 7 am the next day, I can take an extra 180 mg allegra. If that doesn't work, I can take 10 mg Singulair. If that doesn't work, I can take 10 mg hydroxyzine. If that doesn't work, I am to the point of passing out, which means epi pen(s). Have never had to use those before! __________________ Feel well! Deborah |
Title: Re: List of your masto coctail! Post by Riverwn on 01/04/11 at 11:08:29 (Archived from jysmith - original forum) jysmith I had to laugh that I wrote that I have "digestive and flushing issues."grin Of course, I meant turning red, not pushing down the handle! LOLOL. Joan __________________ Take care, Joan ******* "I try to take one day at a time, but sometimes several days attack me at once." 01 November 2010 10:37 PM |
Title: Re: List of your masto coctail! Post by nikweth on 02/17/11 at 10:46:40 I'm taking: AM 1mg of Ketotifen 10 mg of Zyrtec 25 mg of Hydroxizine 300 mg of Randitidine PM is the same except 2mg of Ketotifen Gastrocrom 5ml 4x a day Two extra doses of Hydroxizine in there throughout the day I will be upping the AM Ketotifen tomorrow to 2mg instead of 1mg as I'm in an IA flare that I haven't been able to get out of for two months so I'm temporarily also taking prednisone |
Title: Re: List of your masto coctail! Post by Stacy on 02/20/11 at 07:33:47 My son (22 months) takes the following am 3/4 tsp Zyrtec 1.2 ml Zantac before each meal 2 vials gastrocrom pm 1.2 ml zantac benadryl for breakthrus and epipen jr on hand at all times. |
Title: Re: List of your masto coctail! Post by nevermiss on 02/21/11 at 03:26:59 I have Indolent Systemic Mastocytosis. My meds are am- 1 otc zyrtec and 1 otc 150mg zantac, gastrocrom 3x a day and 1 150 mg zantac in the evening. I get my gastrocrom at CVS here in Boston. I also take asacol 3 x a day for colitis(4200) and meds for Hashimoto's and High Blood Pressure as well as vitamins. One tip I did get from this site was the availability of nasalcrom. When I traveled to Hawaii in November, the airlines ruined some of my luggage(the one with my gastrocrom). Gastrocrom was unavailable on Kauai. I did remember someone using nasalcrom that they got at Walmart. There was a Walmart on the island and I was able to buy the nasalcrom there. Hence, I had a great vacation without the worries of not taking my meds. A big thank you to whomever mentioned it. :) |
Title: Re: List of your masto coctail! Post by gibby on 02/24/11 at 00:40:42 Does anyone use cromyln for vaginal itch?? I have used it with a sensitive astroglide lubricant and it works very well. I'd like to make an ointment but need a script and compounding pharmacy to do this. May be hard to get a doctor to believe me. |
Title: Re: List of your masto cocktail! Post by Riverwn on 02/24/11 at 04:52:26 Im using Monistat cream, both vaginally and externally for itch. I think mine is relaated to a cycle I seemed to be caught in of infections--antibiotics that I react to, so I stop taking them and yeast infections that pop up after each one--I also get candida (thrush) easily, I have diflucan and eat Activia yogurt with life cultures if I dont have a script for the diflucan--it helps tremondously hen my mouth hurts. Good luck!! Ramona |
Title: Re: List of your masto cocktail! Post by Riverwn on 02/24/11 at 05:16:33 Here is my updated list of meds.. it changes as time goes by; Morning; ditropan for bladder spasms 10mg Claritin 10mg Zyrtec 300mg Zantac Vistaril 25 mg for brain fog and bladder spasms 500 mg Quercetin Nasalcrom 2 puffs--for dry sinuses Gastrocrom 2 vials Pataday eye gtts 1 drop per eye BP med-Cardizem Insulin 50 mg prednisone (tapering off for recent shock) 259 Cipro--for UTI will be done in 8 days but Im reacting to it :( not taking Atenolol 12.5 mg down from 100 mg..for tachycardia.. I cant seem to make the final jump off of this, my heart rate jumps wayy up if I dont take this tiny amount. Mid-day: extra antihistamine (zyrtec or Benadryl) as needed (IF reacting) I think I will do this more often, as I am flushing during the day now. GastroCrom 2 vials Evening: ditropan for bladder spasms 10mg Claritin 10mg Zyrtec 300mg Zantac 500 mg Quercetin Vistaril 25 mg for brain fog and bladder spasms Nasalcrom 2 puffs GastroCrom 2 vials Pataday eye drops 1 drop per eye 4 mg Chlor-Trimeton <--just re-added this BP med-Cardizem Insulin 250 Cipro... not taking but Im supposed to be, Im reacting to it As needed: Prilosec for heartburn .02 mg clonidine for high BPs 10 mg vicodan <--usually three a day 50 mg Tramadol, if my pain level is still bad between the Vicodan .25 mg Xanax<--usually once a day, this is a life saver to me, keeps m stress level wayyy down, I do better all day 25 mg Benadryl--for flushing in between doses of meds 25 mg promethezine--nausea/vomiting zoftan for nausea that the above med doesnt control EpiPens (very rarely) I also carry emergency prednisone 60 mg (if needed) IF I start going into shock, I take this just before calling 911, it makes my shock episodes less severe and life threatening MY Emergency meds that I carry--in case of shock are 2 epipens, the steroids 60 mg and Benadryl 50 mg. Recently my primary threatened to take my vistaril away if I didnt stop taking zyrtec. He said I was over dosing myself and he even went as far as to call my pharmacy and tell them that! I stopped taking the zyrtec cause I needed the Vistaril so much.. I ran out of claritan and Quercetan and yes, you guessed it.. I went into shock.. last week.. I think Ive learned my lesson that this is MY body, my primary doesnt feel what I feel and his mistakes could cost me my life! I wont stop taking them again :) hugs, me |
Title: Re: List of your masto cocktail! Post by Cecilia on 04/22/12 at 11:41:32 Morning: 10mg Loratadin X 5 (maybe its another name in english!?) Telfast X 5 Zantac X 1 Cipralex 10mg Levaxin 50 mg Xanax 0.5 mg (I try not to take them every day) Calcium During the day I take a few more loratadin or citrizin. But citrizin makes me a bit tired, Night: Loratadin X 2 Telfast X 2 Attarax X 2 Singulair And I always have an epipenn with me. I have systematic and kutan masto. |
Title: Re: List of your masto cocktail! Post by FarmerJane on 04/24/12 at 10:58:27 I've only recently been diagnosed with MCAD. Allergies all my life so I'm ultra sensitive to anything additional that comes along. A.M. 10 mg Zyrtec (only brand name) 150 mg Zantac (mint coating only) 325 mg coated Aspirin - for the brain fog 40 mg prozac P.M. 10 mg Zyrtec 150 mg Zantac 325 mg Aspirin 10 mg Singular recently added 25mg Hyroxyzine (helps with bladder pain) Feel stable physically. I'm still thinking that nothing is wrong with me and it must be all in my head, however, last time I tried to go off my meds, I crashed. robin |
Title: Re: List of your masto cocktail! Post by PamH on 04/24/12 at 12:50:40 My cocktail. :D Morning -Ketotifen 1 -Cromolyn 2 vials -Singular -Zantac 300mg Noon -Vitamin D -Cromolyn 2 vials -atarax or claritin depending how I feel Evening -Cromoyln 2 vials -Zantac 300 Bedtime -Cromoyln 2 vials -ketotifen -zyrtec I am currently looking for an anti-depressant that I can take without any kind of reaction! :-[ |
Title: Re: List of your masto cocktail! Post by CrystalG on 08/10/12 at 07:32:27 My Cocktail: I usually take Benadryl every 6 hours, or whenever I get hives/flush during the day and I am on Xolair 300mg injections every 4 weeks along with all of this: Morning: Zantac 150mg Clarinex 10mg Florinef 0.1mg Gastrocrom 2 ampules Advair 250/50 Albuterol inhaler Afternoon: Gastrocrom 2 ampules Fioricet if I have a migraine Tramadol if I have intestinal pain Evening: Gastrocrom 2 ampules Albuterol inhaler if lungs acting up Bedtime: Zyrtec 20mg Prednisone 15mg Zantac 150mg Singulair 10mg Veramyst nasal spray Advair 250/50 Gastrocrom 2 ampules Vitamin D Melatonin 8mg |
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