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  Mast Cell Disorders Forum › General Mast Cell Disorders Discussion › General Mast Cell Disorder Discussion › where do we get information
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where do we get information (Read 1590 times)
peter
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where do we get information
04/13/14 at 12:19:23  
The information from specialist in anaphylaxis is totally different to the information on anaphylaxis web sites

The information from specialist in systemic mastocytosis is totally different from mastocytosis websites

Do Thay get there information from different places or just interpreting different
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peter
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Re: where do we get information
Reply #1 - 04/13/14 at 18:02:28  
Well we know there has been A Massive amount of Research on mast cell disesse
And in anaphylaxis over the last 7 years
Someone must know something
Where is my mate Lisa   maybe sum fishing
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peter
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Re: where do we get information
Reply #2 - 04/14/14 at 16:42:39  
If there are no answers then all the bone marrow biopsy all the blood test all the Research was a total waste of time and money
What about the people that this research was done On what has the coast to them been I still have my family but everything else has gone
All for nothing     WHY
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