Kelly~ thank you so much for your reply. When I wrote yesterday, I had no idea what was in store for me. So coincidental since I had just read that article on organic brain syndrome.
I had been taking ONE drop of cromolyn since October 3rd. (I'd tried to up it on the 8th to two drops but couldn't tolerate it, so I went back down) since restarting it on the 3rd (I tried it at a higher dose for 3 weeks in August) I have had terrible nausea, vomiting, depression and for some reason, sleep is nil for me on cromolyn.

So yesterday I thought I'd take my ONE drop and drink it faster thinking it might get out of my system in time to go to sleep. Boy was I in for a ride. I felt very floaty and detached all day (a symptom I had prior to taking h1 and h2) 4 years ago. This feeling brought on some anxiety. Then things settled down for a couple of hours. But by 7:30 last night I got VERY irritable and was crying, couldn't think, my heart was racing, my face was swollen and I had a raging migraine headache (so weird since I had just read that article) my husband got dressed to take me I the er. But I knew they wouldn't know what to do with me, so I took extra Ativan and drank some more Benadryl. This calmed me enough down to stay home. Unfortunately I didn't sleep again.

So I decided not to take the cromolyn today. Part of me is not content with this decision, I wanted it to work so bad,  but another part of me knows that I cannot tolerate it, and it's not worth it.

I'm really happy that you were able to go back on the cromolyn and titrate up without side effects. That's wonderful!  Makes me rethink me decision to stop. But last night was very scary

The thought of being out of options(as far as mast stabilizers go) is upsetting to me, since I couldn't do the cromolyn or ketotefin. But I am interested it the quercetin that you have mentioned. Like you, if like to hear if anyone else has an experience with this. Maybe I'm not out of options after all?

This is why I am wondering about trying Pepcid instead of Zantac. It's an option that is readily available to me.

I want more than anything to stabilize. I know I'm never going to be 100%, but I would be content with 50%!

HI Brigitte,
I'm sorry you reacted so badly!  Given that kind of reaction, I'd run away screaming from cromolyn too...   I've run screaming from plenty of other things after reactions similar to that.

Drat... I'm not sure what beeswax would do to me. I know that honey is out so I'm hesitant of anything bees related. I'm not sure about plant extracts... but probably not great for me either- and yet, I know that these things are designed in mind for some of the most sensitive kids around.  Or maybe not?  He does have a low sal formula.
And I personally don't do well w/ olive oil either! LOL!

I'll be interested to hear what you find out!

I understand completely about getting back to 50%.  
I don't know about you but this disease has certainly given me a new perspective on what is important in life and what isn't.

Kelley

Ive been taking 1500 mg daily in three doses at meal times since july. I think it has helped some, have read that does better with absorption when combined with rutin so will be my next thing to try. Of note, i take pure quercetin cannot tolerate those that have things like bromelain or vit c in them( as lots of vit c has rose hips- bad for sal sensitive). I do use a non citrus vit c powder at timed.

As a really hyper-sensitive person, I would never try any medication or supplement "straight up."  If it's not a time-released medicine, a pill can be broken into small pieces or a capsule opened and some of the contents taken out.  (Check with a pharmacist if you're unsure of the safety.)  I mix a very small amount of it with a lot of water or mix it into well-tolerated food and then drink/eat it slowly over a period of time, sometimes several hours.

GOOD ADVICE JOAN!!
my dear masto friend Olive told me looong ago..aways start slow..and let the body note the change..
redbird

Bruce,
Sorry hadnt been on here for a while. I use SolaRay. I use the Now rutin as well to help the absorption and am starting to feel a little better.