Kelly~ thank you so much for your reply. When I wrote yesterday, I had no idea what was in store for me. So coincidental since I had just read that article on organic brain syndrome.
I had been taking ONE drop of cromolyn since October 3rd. (I'd tried to up it on the 8th to two drops but couldn't tolerate it, so I went back down) since restarting it on the 3rd (I tried it at a higher dose for 3 weeks in August) I have had terrible nausea, vomiting, depression and for some reason, sleep is nil for me on cromolyn.
So yesterday I thought I'd take my ONE drop and drink it faster thinking it might get out of my system in time to go to sleep. Boy was I in for a ride. I felt very floaty and detached all day (a symptom I had prior to taking h1 and h2) 4 years ago. This feeling brought on some anxiety. Then things settled down for a couple of hours. But by 7:30 last night I got VERY irritable and was crying, couldn't think, my heart was racing, my face was swollen and I had a raging migraine headache (so weird since I had just read that article) my husband got dressed to take me I the er. But I knew they wouldn't know what to do with me, so I took extra Ativan and drank some more Benadryl. This calmed me enough down to stay home. Unfortunately I didn't sleep again.
So I decided not to take the cromolyn today. Part of me is not content with this decision, I wanted it to work so bad, but another part of me knows that I cannot tolerate it, and it's not worth it.
I'm really happy that you were able to go back on the cromolyn and titrate up without side effects. That's wonderful! Makes me rethink me decision to stop. But last night was very scary
The thought of being out of options(as far as mast stabilizers go) is upsetting to me, since I couldn't do the cromolyn or ketotefin. But I am interested it the quercetin that you have mentioned. Like you, if like to hear if anyone else has an experience with this. Maybe I'm not out of options after all?
This is why I am wondering about trying Pepcid instead of Zantac. It's an option that is readily available to me.
I want more than anything to stabilize. I know I'm never going to be 100%, but I would be content with 50%!