Anaphylaxing wrote on 04/09/13 at 21:48:15:The only way I know of to get an Rx without you leaving town is to get a liaison doctor who can consult a specialist by phone to save you going while you're this unstable. There are econsults or phone options; I know the econsult one has a fee but has to come from a doc
Have you ever tried taking a Benadryl and then attempting something you don't tolerate as a premedication?
I know you said you recovered before, did that happen out of nowhere or did you have to do something specific?
Sorry I see you already answered the question that I asked again. I forgot.
I guess I can call around or have my mom talk to some doctors in my town, but I'm not optimistic about getting anywhere. Maybe I can quickly explain my situation and ask what is the best they can do.
I don't have much experience with doctors. So I don't know the best way to go about it. Do you think an allergist would prescribe me hydroxyzine and gastrocrom if I tell them about MCADs and my situation about not being able to travel to a specialist?
I think I'll call that Gastroenterologist MCAD specialist. But last time I called several months ago he was backed up with patients for many months. He was willing to take me without a referral back then. I just hope he doesn't want to focus too much on the GI symptoms because I have that under control. It's easy to control what I ingest and just stick to a few foods, but I need help with the brain fog from things that are impossible to avoid inhaling.
This Gastroenterologist MCAD specialist is listed in my state on the Mastocytosis Society website under Medical Research Centers. So you think he'd be my best bet even though my concern is brain fog and not my GI intolerances? I just want to tell him my symptoms and get some prescriptions for hydroxyzine and gastrocrom for brain fog. I don't want to take off my mask for a pointless Gastroscopy.
I mostly just took Benadryl after a reaction to something. I wasn't thinking but I know anti-histmaines would be far more effective if taken before a reaction since they block histamine receptors but don't counteract the result of already activated histamine receptors, as far as I know. I just didn't want to take benadryl all the time because I was concerned about building up a tolerance.
I wish the real Benadryl Dye Free Liqui-Gels would hurry and come back. I just called Benadryl and they haven't discontinued it. They're updating their facility and don't have an estimated time of availability.
I didn't take any meds or supplements to help me when I made a great recovery in the past. All I did was keep my life simple and avoid triggers really well. Although one thing that may have helped is that I eat a lot of olive oil with my meals just for the taste and just months ago I learned that olive oil contains a mast cell stabilizer called Luteolin which is in Dr. Theoharides' product NeuroProtek. So maybe that helped.
So I guess order some of that benadryl online and take it before the trip to that MCAD specialist 100 miles from me and wear my heavy duty 3m 7500 respirator with 6001 filters huh.
EDIT: Actually I just remembered that a closer hospital mentions on it's website that it also has physicians familar with mastocytosis or something like that. I haven't been able to find it online again. And I'm thinking that Gastroenterologist may be really expensive though I'll call and ask. I don't have health insurance.