Welcome, Guest. Please Login
MCD - Mast Cell Disorders
  Latest info can be found on the YaBB Chat and Support Community.
  HomeHelpSearchLogin  
 
Page Index Toggle Pages: 1
Send Topic Print
what is systemic mastocytosis (Read 2201 times)
peter
Mentor
****
Offline


I Love YaBB 2!
Posts: 294

what is systemic mastocytosis
01/23/13 at 14:33:15
 
after catroscopic anaphylaxis shock from a wasp


i was told by a professor of immunology that when i was going red it was anaphylaxis not anxiety   in a privet hospital


the next immunologist told me this would build up in my system and explode in anaphylaxis          a country doctor


the next professor of immunology gave me a letter saying i must not have venom desensitization because of severe life fretening complications      a mayger sydney hospital


a professor of haematology gave me paper work for a medical trail saying you have aggressive systemic mastocytosis or mast cell lercimia terminal disease  sydney hospital


we now no they were all WRONG very very wrong i had a complete nervous brake down internal bleeding 22 kg weigh loss server pain osteoporosis chronic inflamed bowl


dont blam the patens doctors


ps if venomous spiders and snakes had wings and were flying around you every day how would you file
Back to top
 
 
IP Logged
 
Joan
FORUM ADVISOR
*****
Offline



Posts: 1502
Colorado
Re: what is systemic mastocytosis
Reply #1 - 01/23/13 at 17:33:33
 
Hi Peter,

  How are you feeling now?  If you feel like sharing, I'd like to know if you have meds that are helping you feel better.  Are they giving you bisphosphonates for the osteoporosis?  Can't remember if you had them.

Joan
Back to top
 


Joan
 
IP Logged
 
Lisa
FORUM MODERATOR/ADVISOR
*******
Offline


I am not a doctor.
Posts: 1499
Volta Redonda, RJ Brazil
Re: what is systemic mastocytosis
Reply #2 - 01/23/13 at 21:07:03
 
OH MY GOODNESS PETER!!!!!   I'm so sorry to hear this!!!!   When did this happen?   Are you saying that the doctors are telling you now you have aggressive masto????!!!    Are they right?   Oh I hope not!!!!    I was wondering why you were so quiet and what was happening with you.   I'm so sorry!     I'm going to keep you in my prayers Peter and I hope that the doctors are WRONG.   They could be if they aren't familiar with mastocytosis.    Praying for you and sending you big HUGS your way!!! Smiley

Lisa


Back to top
 

Donīt forget, there is so much more to life than being sick!
 
IP Logged
 
peter
Mentor
****
Offline


I Love YaBB 2!
Posts: 294

Re: what is systemic mastocytosis
Reply #3 - 02/27/13 at 12:59:22
 
update diagnosis some where about harth way between ISM and ASM

bone marrow biopsy number 3 ] cd25+ has disappeared small clusters have disappeared

left with scatted spinderly shaped mast cells

still diagnosed with systemic mastocytosis


i think there are other names for some one who has been

ige poisoned and bone marrow contamination

i have had to take some time off work agan just wene out but doing beter now have to find ezyer work
Back to top
 
 
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print