Yes, this is an edema response (swelling) caused by aberrant mast cells.  I am to carry an epi pen and was taught how to use it.  I was told to take additional H1 and H2 blockers when this happens.

I said to Dr. A, "this will make me sleepy and want to lay down."  He answered, "I would rather you be sleepy than dead."

This concept of my body reacting this quickly because of aberrant mast cells is new to me.  Prior to Dr. Afrin talking to me about this, I thought I had some unusual different problems like interstitial cystitis and postural orthostatic tachycardia, but I never considered them life threatening....just a nuisance.

Now, I am looking at my malfunctioning body in a whole new way, and I need to fully accept the problems I may face if I am not informed.


Alas, this is difficult emotionally......first coasting along thinking I had a few odd things wrongs, and now realizing I could develop difficulties at any time and in any place.   It will take some time for me to come to terms with my updated vision of my ill-health.  It is depressing to adjust to this, to say the least.  But, the good news I have lasted 61 years on the planet, and that is before I had any clue what was happening to me health-wise.

All for now.  I'm  trying to accept this new info gracefully.  It is going to take some time.

It is a hard adjustment when told that your condition could be fatal. On the positive side, though, they don't mean that it will shorten your longevity. It is just the actual attack you have to watch out for. I have Idiopathic Anaphylaxis. Technically, I guess we could say that at any moment I could have an anaphylactic attack and drop. In reality, that is not a worry for me at all. I stay aware of my triggers and how I handle them throughout the day, and that prevents any attacks for me. No worries. Just have to live smart.