Hi Everyone

Have been taking Ketotifen for a couple of weeks now and am already starting to feel more stable - able to do more things like shopping, taking my dogs for a short walk, going out into town for longer etc.     First day I took it I felt really drowsy then fell asleep - lost three hours - it was heaven!    didn't happen again though.

I don't feel as ill or as 'jittery' as I used to (please don't ask me to explain what I mean by jittery, but its that horrible feeling that precedes a crash/reaction  ).  I'm also about to increase the Ketotifen to 2mg twice daily from 1mg twice daily at the request of my consultant.  I also take Fexofenadine/Allegra 180mg x4 daily, Singulair and Ranitidine.  However, there have been two occasions in the last week when the Ketotifen did not work at all and I felt very ill again - I don't know what triggered me but suspect it was due to monthly hormonal changes as these are a known trigger for me.  

TallBird

Hi Tallbird

I am pleased you are doing so well on Ketotifen and are becoming more stable.  I am just about to start so hope I can tolerate it.  I pick it up tomorrow as the Pharmacy did not have it in stock.  I will let you all know how I get on.

Anne

Hi all,

I'm about to go on Ketotifen (finally!) but need updated info on where to get it.  The most recent thread I could find about it here was from last year.  (Maybe I missed more recent info.)

So, if it's not too much trouble could I ask others to weigh in on where they get their Ketotifen.  I need to get on it as soon as possible, so I thank you in advance!!

Julie