How does one tell the difference between muscle pain and bone pain?  Since March I have had a sickening dull pain in my arms and legs which I now think is bone pain, it wakens me in the early hours and often I cannnot get back to sleep due to it.  I also have achy arms sometimes which feel more like muscle pain - like lactic acid burn in my arms which hurts.  Recently I have been found to be deficient in Vitamin D and am now taking supplements, whether this will help with the pain I don't know?.  I am aware that mast cell disorders can be linked to osteopenia and osteoporosis.  I have always thought that bone pain and muscle pain is probably subjective.  Am still going thru' the diagnostic process so don't have a definitive diagnosis as yet, but its looking likely to be MCAS.  How do you differentiate this pain and how do you remedy it, also should I be requesting investigations into what it is? Would a bone marrow biopsy be useful?

Thanks

Hi Heather

I have had my tryptase measured and it was 'normal' at '5' so presumably this puts me in the realms of MCAS rather than SM?    I'm uncertain what the next stage is, however I think I may have to do some further tests to demonstrate that some of my mediators are raised.

Whilst I like the sound of having a massage, I really don't think I would want anyone touching my arms and legs as they can be so painful at times.  Most days they are sore.  As I said I don't know whether its bone or muscle pain - is this normal for mast cell disorders?  The bone denisty scan sounds like a good idea given that I am Vitamin D deficient.

Thanks Heather for your advice.