I switched to the compounded version of Gastrocrom!  It comes in gelatin capsules, which I've been opening so I can stir the powder into water.  The cost is about 85% less than Gastrocrom.  I have to personally submit the claim to my insurance company and wait for reimbursement, but whatever... it is sooooo much cheaper.  

I've also found that the taste is not as bad.  Has anyone else noticed this?  I wonder if the bad taste from Gastrocrom is really from the plastic tubes.  This is going to make travel so much easier!!!

Heather

I talked about it with Dr. Greenberger last year and he indicated that the powder should still be mixed with water.  (I'm not sure why... this would be an interesting thing to research.)  I think my insurance will pay for it. The compounding pharmacy I used just doesn't work directly with my insurance company.

Heather

What is the name/brand? My newest version of insurance will not pay for gastrocrom and it is going from 40/month to not covered

I get mine in the powder form from the compounding pharmacy out of Washington.  We had an insurance change.  I switched slowly and did fine, in fact I thing the powder works better for me.  Mine does not come in capsules. I just measure it out and dissolve it in warm water.  I use it 4 times a day, a months supply runs around $115

cn:
I like Pam & quite a few others get in my case ketitofin or gastrocrom from Clark's in Washington. The girl can be abrupt, but Mark the pharmacist is fabulous. When I first got my script he waited on hold for my doc, whose very busy, for a 1/2hour just to get my quantity per month correct & I get mine in 3 days via the mail,once I email them. So I would recommend them highly.
MikeV

Brigitte,
Cromolyn is fabulous!  Start slow and you will be fine...I have read that if you use one vial a day for a week and add a vile a week,that you wont have very many if any side affects!  It will take 8 weeks to get to the full dose.  I started mine much more aggressively!  The only difference to me between the liquid and the powder was the price!  Good luck!  Also when I get it compounded it does not come in capsules but a powder you mix in water.

Good job!  Hang in there...remember it takes several months to get the full effect!  (4 months for me)  Glad you went and got it started!

Brigitte, take a deep breath and try to be calm.  I was recently put on an anxiety med by my specialist because he doesn''t think all my reactions are anaphylaxic in nature...I don't know if they are or not, but I do know that something is causing my throat to get tight....then I panic! So we are trying to figure out if anxiety is causing my mast cells to dump or if my mast cells are dumping and then the anxiety hits....Either way anxiety is causing me issues.  You told me that you have wanted to try this drug for 2 years and you were afraid of it, therefor you have a lot invested in getting this drug and being able to take it....you are stressing Hun!  The liquid viles are made up of a tiny bit of med and the rest is water, plus you are diluting it in several oz of water.  I don't think you are really getting enough of the med right now to cause that kind of reaction...I think it is more related to the feelings and stress that are causing you to trigger.  I am not a doctor so Im just giving my opinion.  Remember the med can only help you if you get it in you...so try to do some calming exercises today.  Try not to worry about the side affects...most of the side affects for me were flu like symptoms...but I was having them already.(I started at 4 vials a day and up it to 8 in less than a week).  Calm...Calm...Brigitte, you got this girl!