This sounds like an obvious case of mast cell disease. Dr. Castells In Boston sees children. That is who I would go to right away if it were my son.

I live in AZ.  We work with a naturopath that works with dr castells now.   just started the process.  we see castells in october.  you can private message me...

Tina, Dr. Theo is not licensed to practice medicine in the US, so he can not help.  Dr. Castells is the ONLY one who sees children.  You can try talking with her youself about this child since she's already speaking with you about Sean.   This kid sounds like MCAS without a doubt, but he could be SM without anybody knowing it.  The trytpase will tell if he's SM or MCAS and then based upon that you'll know what to say to Dr. Castells.  

It's worth a try anyway!!

Lisa

Joan, the way to find this out is to write to her and ask her for yourself.   Very often doctors who write articles have either their own emails published on the article or there is a corresponding author whom you can contact.   Write to whomever is listed telling them that you are looking for this doctor and wondering if she´s up to date on masto because you are looking for a doctor in that area.  

Another thing, doctors who write medical articles, even those who write articles of just a case report they had in their hands, they have to do some kind of research and study on the disease of that patient case.  They have a minimal understanding and interest at least.   They may not be experts by any sense of the word but at least they are a step ahead of the other doctors in their region for having had a masto patient with a case odd enough to write about and odd enough to force them to study in order to produce the article.  


I have learned through my journeys that you have three kinds of doctors - low level doctors who just do their job, period.   Then  you have those who are a bit more interested in medicine, the mid-level doctors, and they are those who write the case reports of the oddities they come across.  They find the odd cases cause they are a bit more curious, but they are not so very curious because they don´t take that odd case or two and keep going further into research.   Then you have the high level doctors who LIKE RESEARCH and are EXTREMELY CURIOUS about medicine.   These are the ones who either go into research right off the bat, or they find some odd cases which pique their curiousity and they begin to go step by step further into the area and begin to write article after article about what they are learning and discovering and eventually become so into their studies that they become recognized authorities by their colleagues.  

So, a doctor who produces only one article is not going to be an expert, but again, this doctor is still a step ahead in the game and worth looking into as a PCP.

So, my dear, I´ve given you some homework!   Let´s see how you do with the challenge!!       I rather think you´ll get an A+

Joan, I saw the website for that dr too a while back and wondered if she would be a good option for people in AZ.  At least she is aware!  right!

Thank you Joan for checking this out.

I couldn't agree more.