I'm so sorry Hope to hear of your mother's illness and her coming to the end of her journey and of your suffering through all of this too. Death is a fact of life, as much as birth and so many of the others things we experience - it doesn't make it any easier to have to go through it though. I'm sorry.
Hope, strong emotions are major enemies for masto patients and to the mast cell. They degranulate it. You'll read on the lists as to triggers that they only put "anxiety", but I've found this not to be true. I've triggered from situations which left me very surprised or shocked. Being overly excited and that kind of anxiously awaiting something, this is also a trigger. Grief is another big one. And also the weeping and sobbing that grief causes will also trigger you. With a mast cell disorder, we MUST keep our emotions in check and always well balanced. It's not that you can't cry, or be excited, or go through a shock or surprise, but you need to have your meds on hand and try your very hardest to check your emotions and keep them under control.
If this is impossible, as it can be, then especially with grief, you must have some anti-anxiety medications on hand and be using them if necessary. I have heard Dr. Escribano say that this is what he will prescribe some patients and I think it depends on each case.
Yes, I do think Dr. Afrin should be told about this, as your doctor, and that he needs to step in for you with this situation. It can indeed start the snow ball rolling because our emotions, especially with just such a time as loss, grief and mourning, take TIME to regain control of them. The snow ball can get rolling and get overwhelming and when you have a disease which takes advantage of that snow ball, then it only makes sense to have meds on hand to help deal with it.
I don't know if you've had to face the death of a parent before, I was 24 when my father died from his aortic aneurysm, but I learned some important lessons - 1. one is that you have a RIGHT to grieve, you have a right to cry and that nobody can dictate to you the time which YOU need to deal with that grief. Be patient with yourself and don't let anybody try to force you to "buck up". More often than not those people are made uncomfortable by your grief and they are only trying to make themselves less uncomfortable. Everyone has their own time period for healing and you need to feel free from any pressure from others. You will heal and as long as you pace yourself and come to a place when you say to yourself, "Okay, this is enough, I must begin coming out of this" and then take determined steps to turn yourself back around, then you will not only have given yourself the time you need to heal, but you will also then take the steps to return to your normal life and outlook on life without too many scars.
2. Second is that grief is a private experience. It's intimate and personal even amongst siblings and loved ones. We all grieve differently and we all must find out own way through it at out own pace. More often than not, we want to be left alone in the beginning for our mind and emotions are too overwhelmed to handle much outside interference. Our emotions are right on the very edge and we have barely got any control over them and our minds are doing all it can to hold the package together. This is why anti-anxiety meds would be a good help for a masto patient because of how fragile our grip over our emotions are. The last thing we need is the extra trouble the triggering creates.
So, give yourself TIME and be PATIENT and KIND with yourself and WITH OTHERS around you for they are also grieving too.
I hope this helps you!
Lisa
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Seriously Stressful Family Situation - Any Coping Ideas? (Read 3640 times)
