Welcome, Guest. Please Login
MCD - Mast Cell Disorders
  Latest info can be found on the YaBB Chat and Support Community.
  HomeHelpSearchLogin  
 
Page Index Toggle Pages: 1
Send Topic Print
Rare-List you must see it to believe it (Read 5651 times)
peter
Mentor
****
Offline


I Love YaBB 2!
Posts: 294

Rare-List you must see it to believe it
03/08/12 at 14:16:56
 
Back to top
 
 
IP Logged
 
Joan
FORUM ADVISOR
*****
Offline



Posts: 1502
Colorado
Re: Rare-List you must see it to believe it
Reply #1 - 03/08/12 at 19:26:14
 
Did you notice that mastocytic enterocolitis, cutaneous mastocytosis, mastocytosis, and systemic mastocytosis were all listed separately?  Didn't have time to see if there were more.
Back to top
 


Joan
 
IP Logged
 
peter
Mentor
****
Offline


I Love YaBB 2!
Posts: 294

Re: Rare-List you must see it to believe it
Reply #2 - 03/09/12 at 09:50:41
 
The list shows how over the years MAD MEDICAL science has got
I bet the same mechanism coueses symptoms in  theses
diseases-disorderes- syndroms and the diffrent names are there to comfuses and dvide That is the OLD way things are changing now
i hope
Back to top
 
 
IP Logged
 
Joan
FORUM ADVISOR
*****
Offline



Posts: 1502
Colorado
Re: Rare-List you must see it to believe it
Reply #3 - 03/10/12 at 16:19:01
 
Except for the general term, mastocytosis, the others specifically refer to different primary problems.  M.E. refers to a problem confined to the GI tract, and it can be caused by too many clonal or non-clonal mast cells.  Cutaneous, of course, refers to a problem predominantly in the skin, while systemic means the entire body.

I think the separate names are intended to be more specific diagnoses than a general term, especially since the treatment varies somewhat for each.  I agree that the same basic mechanism probably causes them, in that some cases show a gene defect and some don't, while all of them indicate mast cell activation.  They all fall under the broadest category, Mast Cell Disorders.
Back to top
 


Joan
 
IP Logged
 
peter
Mentor
****
Offline


I Love YaBB 2!
Posts: 294

Re: Rare-List you must see it to believe it
Reply #4 - 03/10/12 at 20:20:04
 
hi joan sorry i ment the hole 7000 names on the list
but your post is very good anyway
in 10 years the list maybe 1000
Back to top
 
 
IP Logged
 
Joan
FORUM ADVISOR
*****
Offline



Posts: 1502
Colorado
Re: Rare-List you must see it to believe it
Reply #5 - 03/11/12 at 05:47:55
 
Good point.  Diagnosing is getting much better, so sometime enough people will be diagnosed to take the disease off the list.  I think this will happen with mastocytic enterocolitis.  My doctor alone has verified over 400 cases it it by biopsy.
Back to top
 


Joan
 
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print