Hi everyone - what a long strange trip this has been.  

I was diagnosed with GERD, Celiac, and Mastocytic Enterocolitis 4+ years ago.  The GERD cleared up when I started taking enzymes with every meal.  Yay.  I've been gluten free for about 6 years, but have other food intolerances too which I'm learning are probably triggers for the Mastocytic Enterocolitis.  Last November I had chronic diarrhea for about 6 weeks, which mysteriously cleared up.  Then about 6 weeks ago it started up again.  I never had any major symptoms with the Mastocytic Enterocolitis before, but remembered it can cause that symptom so I called my GI and requested Gastrocrom.  I've only been taking it for a few days now and am hoping it will bring relief in 2-3 weeks.  Am considering trying the specific carbohydrate diet if the Gastrocrom doesn't work.  Anyone have any success with that diet here?

Also I have environmental allergies and asthma so am taking Claritin D and Singular 10mg which I understand are both supposed to help with the Mastocytic Enterocolitis.  I have an appointment with my GI in April and plan to have him order the MRT test for me again (it has been 5 years) as that might help me identify my current triggers.  

Questions and suggestions are welcome.  Thanks!

Hi Joan - thanks for the welcome.

Until recently I'd never heard of the low histamine diet.  I'll google that to learn more.  

I was diagnosed with ME by Dr. Scot Lewey (GI) in Colorado Springs.  At the time I didn't think much of it as I was not having symptoms.  He also diagnosed me with Celiac after years of symptoms and testing negative for the blood tests.  I have an appointment with him in April.  I am going to request MRT testing again since food sensitivities change over time.  I'll actually do the elimination diet with the nutritionist this time as I need to know what my triggers are for this wonderful condition.  

I did have stool testing for parasites back in November as well as e coli etc.  That was with my primary care physician who I saw because he's closer and I didn't even think about ME as a cause never having had symptoms.  That said, I have had a TON of stress over the past year and I'm guessing that may be why I started having symptoms.  Perhaps Dr. Lewey will order a retest for parasites etc.  I do take probiotics, and NOW super enzymes which include bromelain I think, and of course gastrocrom.  When I first picked up the gastrocrom I didn't read the dosage info very well and was taking only half the amount needed.  Since I started taking the right amount my symptoms have improved.  Not 100% but I am better.  

I am guessing Dr. Lewey will prescribe an H2 antihistamine as you suggested.  Yes, if you have already identified your triggers MRT testing may not do you much good.  I'm clueless right now as to what's bothering me, though I suspect grains in general are going to show up as triggers.  

Thanks for the heads up on the Gastrocrom taking a while to work.  Since I do feel somewhat better I am optimistic that I will continue to improve over time.  Do you eat between meals and if so do you take Gastrocrom at those times too?  I'm not clear on how it works exactly.  

I have not been diagnosed with any other mast cell disorders, though I do have allergies and asthma.  Both have improved a great deal since moving to Colorado from California.

Would love to go to the support group.  Thank you for the heads up!

Kathryn