Doozlygirl
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Joan, Been looking for references to betablockers and mast cell issues, outside of blocking epi pathways. This is not the one I was looking for, but stumbled across this tonight. It is from the DINET website under betablockers under the What Helps? Secton.
Beta blockers should be used with caution, if at all, in those with mast-cell activation disorders (Shibao, Arzubiaga, Roberts, Raj, Black, Harris & Biaggioni, 2005). Beta blockers may trigger mast-cell activation. In case you don't recognize them, Roberts, Raj and Bioggioni are leading physcians on autonomic dysfunction at Vandy in Nashville.
Will continue to find that reference I am looking for. Thanks, Lyn
Ana, Can I ask for you to elaborate your thoughts that my blood patch/CSF leak may have had on my TTT? That was 2 years ago, and I haven't once questioned it. I am so intrigued by your perspective. My UAE was March 10, Blood patch around March 22, EP consult March 30, who ran 3 week Holter, EKG, and labs, the deferred and TTT, since it was already ordered by endo to be done the next week with a QSART and TST on April 5. Is the blood patch or my likely hypovolemia the curious part?
Fluid and salt loading - not as effective as I would have liked. My BP is pretty typical during a flare, but essentially normal while laying, then really high at sitting and drops with standing. Out side of a flare, it is either normal or borderline high (110/60 to to 139/89).
Lyn
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