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Newbie with Dysautonomia and anaphylaxis. Suspect MCAD (Read 21019 times)
MCAS and POTSMama
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Busy working Mom of 3
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Colorado
Re: Newbie with Dysautonomia and anaphylaxis. Suspect MCAD
Reply #45 - 03/27/12 at 18:42:55
 
Lyn,
Thanks for the support.  "Venting" instead of "Whining" - I like it!

Yes, I thought that "anaphylaxis like" was odd too - - but I think the doc meant that I didn't have edema, hives, or a consistently dropping BP (I was volatile BP/pulse, fluctuating between high and low).  My symptoms in an episode are usually flushing hot then feeling very cold, light headedness, volatile BP/pulse, feeling like my throat is clothing and a tight chest/trouble breathing.  But I now know that anaphylaxis can have a quite different presentation (and even below level) in us mast cell disordered people.

Re: the mildly elevated IgE - it was when my first allergist tested it a couple months earlier too, and my blood work a couple months before that showed excessive inflammation.  So it's possible a conventional allergy is going on along with the mast cell disorder, but I'm not sure to what.  

As an update my migraines have stopped again fortunately - - it may have been a hormonal thing as I'm in menopause (nearly done, I think).  Tried cromolyn again and had a milder vertigo attack, so am still holding off a bit longer to re-try and titrate up.  I'm still in a holding pattern of doing better with the H1/H2 (Allegra, Atarax, Zantac) and Singulair anyway, so not going to rock the boat yet, but sure do want to eat more than the 6 foods I now can tolerate.

Here's rooting for you, me and Ana (and anyone else in this acute illness phase) to get well quick!
Carol
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Carol
MCAS and Hyperadrenergic POTS
 
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