Hello!
Here's my story in brief:
* I'm a dancer, wife & mother of two little girls
* I have Ehlers-Danlos Syndrome (EDS), Classical type
* Both my mother and girls have EDS and are showing signs of
possibly having the mastocytosis issues that I have - my mother
most severly.
* I'm in the process of getting a mastocytosis diagnosis
* I am having increasing numbers of:
~ sinus infections & other upper respiratory infections
(the docs have tried everything to get rid of the inflammation,
and they aren't working - I'm at the point of needing to try
specialized drugs for mastocytosis patients)
~ GI track issues
~ I have a history of cysts and fibroids (uterine, liver, pancreas,
ovaries...)
~ I have various skin sensetivities and weird reactions to things...
* I've been tested for allergies and it looks like I have none
- even to the things that I get sever allergic type reactions to.
* I'm currently waiting for my first tenacin X blood test results
* My allergiest/immunologist has done all he can and is ready to refer
me to a specialist; my rheumatologist has something to try since she
has a touch of experience with mastocytosis patients; but I would
like to get an experienced mastocytosis specialist in my roster of
doctors.
So, that's about it.